Most recents (6)

Terri Me3

@TerriMe3

What if I decided to file a lawsuit (against ??) for the RIGHT to choose to die w/ dignity BECAUSE I am being DENIED the RIGHT to treat my severe intractable pain w/ #pain meds? Hang w/ me for a sec.. #ipp #cpps

I DON'T want to die! I also DON'T want to be forced to live a life of relentless suffering w/o pain meds. Would a #HumanRightsLawsuit help fight for our rights for adequate pain control? #PainManagement
@ACLU @acluohio

How can they legally deny me the right to die w/ dignity (& on my own terms) but they are also trying to FORCE me to LIVE the rest of my life in horrible excruciating #IntractablePain without the Rx #opioids that I needed & have taken for 19 years to function? @ACLU
@acluohio

Read 5 tweets

Boone

@DanBoon63784314

@ReeseSTyrell 1 of 2
#Surveillance of millions of Americans, physicians, pharmacies; brought to u by #DEA
#DataMining in #healthcare incl but not limited 2
#ChronicPain #intractablepain #OUD
#Anxiety #PTSD #Cancer
Request fo proposal:
filtermag.org/wp-content/upl…
See pics for "Statement of work"

@ReeseSTyrell 2 of 2
Remaining pics, "Statement of work" required for proposals to #DEA #Surveillance & #DataMining in #healthcare!
States & DEA already going after drs who dare 2 treat, Rx med necessary #opioid analgesics for #ChronicPain #intractablepain pts

#MMEMafia will only get worse.

@ReeseSTyrell #PatientSurveillance by #DEA
filtermag.org/dea-expand-pat…
#DataMining in #healthcare for specific populations.
Have #chronicillness #ChronicPain #RareDiseases #Anxiety #OUD? Your medication will determine if you'll b under surveillance.
Think your privacy is protected? Think again

Read 4 tweets

Boone

@DanBoon63784314

Thank you to @BethDarnall for speaking at #Minnesota @MinnesotaDHS #Opioid Work Group mtg on Thursday: Spoke of importance of #patientcenteredcare, #patientconsent necessary if taper & strongly advised AGAINST force tapers & using pre-determined MME'S. #ChronicPain #NoOneSize

MN #opioid Work Group created Taper Guidance. It will be out 4 public comment soon. Some areas extremely problematic. Although it states NOT 2 taper solely 2 meet system or state policy; MN Quality Improvement requires Drs 2 meet MME thresholds = TAPER TO MEET STATE POLICY. 🤔

If #ChronicPain pt wants 2 try 2 taper from #opioid analgesics 4 any reason & CONSENTS, there needs 2 be safe way 2 do it. Problem throughout U.S, incl #Minnesota; is non-consensual tapering. Many experts, incl #addiction specialists, stress dangers & even state it's UNETHICAL.

Read 11 tweets

Boone

@DanBoon63784314

#PBM
Pharmacy Benefit Managers have undoubtedly created barriers 4 patients w #ChronicPain #intractablepain #PalliativeCare #RareDiseases w medical necessity for #opioid analgesics. Citing CDC GLs & going even further. This ex shows 67% decrease in Rxs.
benecardpbf.com/PBF/resources/…

All PBMs do something of this nature & plans vary. They should look for & prevent abuse & fraud, but as outlined in their own literature on policy, Benecard is absolutely interfering btw Drs & patients by using CDC GLs & unilateral decisions on what is appropriate for a patient.

Per CDC, based on their clarification of intent of #opioid guidelines; these policies meet definition of misapplication & misinterpretation. Being as @CDCgov @CDCInjury neglects to intervene in official capacity; PBMs, #healthcare insurance companies will continue this practice.

Read 5 tweets

Lelena

@LelenaPeacock

I have a grievance regarding my mom's care during her bout w/#sepsis. #dementia

At the end of October 2019, my husband & I awoke to find mom's breathing labored, & her mumbling to let her sleep. We let her rest. A fever spiked within the hour, & suddenly she became deathly ill.

She was twitching, sweating profusely, in full rigors, & unable to sit up/speak well. She looked TERRIFIED. I thought she had a stroke. Turns out, it was a high fever from an infected gallbladder. She landed in the #ICU. ALL her vitals were jumping around. It was horrible.

She landed in the ER & eventually the ICU. Turns out she had #sepsis from the infected gall bladder. The ICU's 1st step? Changing her meds around INSTANTLY. Specifically they rescinded ALL #opioids abruptly. After over a decade on them, she was thrown into acute withdrawal in ICU

Read 16 tweets

Lelena

@LelenaPeacock

My name is Lelena.

I am a #ChronicPain patient.

I am required to pee in a cup monthly to show #compliance to my #LowDose #opioid regimen.

I am painted as despicable, helpless, & #unclean by the powers that be.

I am a modern-day #Leper.

#EndStigma #PainLeper

Newsflash, America:

I'm not JUST a #ChronicPain patient.

I am not helpless.

I am not #unclean.

I am not #despicable.

I don't just use #pills to overcome my #SeverePain.

I refuse all #stigma, misconceptions, assumptions, and #labels.

I am an #Overcomer.

I will be criticized for calling myself a #ChronicPain patient.

People will say: she wallows in illness. She enjoys it! She IDENTIFIES with her pain.

Wrong. It is part of my reality. I must face it & battle it daily.

And I do. Despite all the negativity I face from others.

Read 5 tweets

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Discover and read the best of Twitter Threads about #IntractablePain

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