Discover and read the best of Twitter Threads about #patientconsent
Most recents (2)
Thank you to @BethDarnall for speaking at #Minnesota @MinnesotaDHS #Opioid Work Group mtg on Thursday: Spoke of importance of #patientcenteredcare, #patientconsent necessary if taper & strongly advised AGAINST force tapers & using pre-determined MME'S. #ChronicPain #NoOneSize
MN #opioid Work Group created Taper Guidance. It will be out 4 public comment soon. Some areas extremely problematic. Although it states NOT 2 taper solely 2 meet system or state policy; MN Quality Improvement requires Drs 2 meet MME thresholds = TAPER TO MEET STATE POLICY. 🤔
If #ChronicPain pt wants 2 try 2 taper from #opioid analgesics 4 any reason & CONSENTS, there needs 2 be safe way 2 do it. Problem throughout U.S, incl #Minnesota; is non-consensual tapering. Many experts, incl #addiction specialists, stress dangers & even state it's UNETHICAL.
I get inspired by real world problems that I feel are solvable with data, because then it becomes within my scope to tackle. If I look at #glioblastoma I see room for #blockchain to provide clarity on #patientconsent for uses to enable monetization, ideally to help offset costs.
To unpack these things further, I mean leveraging smart contracts for dynamic consent or 'prosent' as presented here: jme.bmj.com/content/early/…
This would allow for the patient to opt into selling their data to researches, insurance or pharmaceutical companies
This would allow for the patient to opt into selling their data to researches, insurance or pharmaceutical companies
Another resource I've found is this one on how the Malta Biobank is using dynamic consent via hyperledger fabric...
"a more robust model could lay the foundation for a closer collaboration between biobank managers, researchers, and research partners" doi.org/10.1038/s41431…
"a more robust model could lay the foundation for a closer collaboration between biobank managers, researchers, and research partners" doi.org/10.1038/s41431…
