Discover and read the best of Twitter Threads about #painpatients
Most recents (7)
What’s the deal w/ people in #pain using #opioids? (Read entire thread.) We are not “drug addicts.” We are physically DEPENDENT on our meds, which we need to function w/out pain (i.e, to function). Physical dependence occurs on heart meds & #antidepressants too. #ThisIsUs
And I am not trying to stigmatize #addiction here. But rly, let’s talk; chronic pain patients (#CPPs) have been forced to KILL themselves due to untreated pain, due to bad #policy, due to the #stigma, foolishness & financial incentives of others. This has a name: opiophobia…
If you took me off ALL opioids, I (like most #painpatients) would go through ugly opioid #withdrawals (and make sure to poop/puke on YOU for causing them)! 😂
And even after months of “abstaining,” and withdrawals disappearing, I would be “clean” in the eyes of the world, but…
And even after months of “abstaining,” and withdrawals disappearing, I would be “clean” in the eyes of the world, but…
I'd like to explain why #PainPatients & the #disability community is having a VERY difficult time w/this suite of articles about #ChronicPain.
I did find a more balanced view in some of the articles, & that's a good start for journos covering #ChronicPain. Sadly, it isn't enough.
I did find a more balanced view in some of the articles, & that's a good start for journos covering #ChronicPain. Sadly, it isn't enough.
For the past 7 years, #PainPatients have endured the draconian shift in #healthcare & attitudes toward pain & disability.
Countless patients lost their meds.
Many patients lost their doctors.
Some patients lost their jobs, their spouses, even their children.
Some of us died.🥺
Countless patients lost their meds.
Many patients lost their doctors.
Some patients lost their jobs, their spouses, even their children.
Some of us died.🥺
In 2016, the #CDC unleashed their #Guidelines for prescribing #opioids for #ChronicPain.
The guidelines were adopted as a mandate in Rxing & the #StandardOfCare across the board.
Overnight, #PainPatients became a glaring liability for all doctors, & the consequences are harsh.
The guidelines were adopted as a mandate in Rxing & the #StandardOfCare across the board.
Overnight, #PainPatients became a glaring liability for all doctors, & the consequences are harsh.
Today I wish to honor @kathleenaie.
She was a Wife
A Mother
A Dear Friend, &
A Fierce Advocate for #PainPatients.
Kathleen passed away suddenly. She was & will always remain a force for good. She fought tirelessly for others.
We will miss her SO much. Thank you, Kathleen!🌸💚
She was a Wife
A Mother
A Dear Friend, &
A Fierce Advocate for #PainPatients.
Kathleen passed away suddenly. She was & will always remain a force for good. She fought tirelessly for others.
We will miss her SO much. Thank you, Kathleen!🌸💚
She was ever-present & vocal about the issues #PainPatients face in medicine today.
Her mission in life was to help others in any way she could.
I believe her poor little body couldn't keep up with her heart & her passionate pursuit of restoring rights & medication for #CPP.
Her mission in life was to help others in any way she could.
I believe her poor little body couldn't keep up with her heart & her passionate pursuit of restoring rights & medication for #CPP.
I admired her tremendously. I'm disappointed in myself, because I always meant to tell her how much I looked up to her.
I'm grateful I had the opportunity to know her, if only though our advocacy & shared passion for others.
I can only hope to be more like Kathleen. 🙏🌸💚
I'm grateful I had the opportunity to know her, if only though our advocacy & shared passion for others.
I can only hope to be more like Kathleen. 🙏🌸💚
Thank you to @BethDarnall for speaking at #Minnesota @MinnesotaDHS #Opioid Work Group mtg on Thursday: Spoke of importance of #patientcenteredcare, #patientconsent necessary if taper & strongly advised AGAINST force tapers & using pre-determined MME'S. #ChronicPain #NoOneSize
MN #opioid Work Group created Taper Guidance. It will be out 4 public comment soon. Some areas extremely problematic. Although it states NOT 2 taper solely 2 meet system or state policy; MN Quality Improvement requires Drs 2 meet MME thresholds = TAPER TO MEET STATE POLICY. 🤔
If #ChronicPain pt wants 2 try 2 taper from #opioid analgesics 4 any reason & CONSENTS, there needs 2 be safe way 2 do it. Problem throughout U.S, incl #Minnesota; is non-consensual tapering. Many experts, incl #addiction specialists, stress dangers & even state it's UNETHICAL.
Bravo 👏🏻 👏🏻👏🏻 to @Alberta_Pain. Pulled up their ‘Conference At a Glance’ & what do I see? People with #livedexperiences on the agenda. Thank you! Recently another #pain conference was held void of those w #livedexperiences. One ☝🏼 presenter, a #physician defended
the absence (or imo exclusion) of those w #livedexperiences by indicating #painpatients would not benefit due to the complexities of the information, nor would this #physician want those with #pain at the conference. My position as a #caregiver as well as advocate for 2/
better pain care, ‘nothing about us without us’ and to be blunt if you have difficulties as a #physician with having those with #livedexperiences participating, you need to evaluate your own issues. As an #American I give kudos to #Canada. I am impressed with their 3/
.@CMSGov
THIS medpagetoday.com/psychiatry/opi… is BAT$H&T crazy! As a #PainPatient you should know PEOPLE WILL NOT LIVE IN PAIN! if they cant get relief from "Dr Real" they'll get it from "Dr Feelgood" and old Doc Feelgood has NO quality control! THINK THIS THROUGH! Bear with me...
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THIS medpagetoday.com/psychiatry/opi… is BAT$H&T crazy! As a #PainPatient you should know PEOPLE WILL NOT LIVE IN PAIN! if they cant get relief from "Dr Real" they'll get it from "Dr Feelgood" and old Doc Feelgood has NO quality control! THINK THIS THROUGH! Bear with me...
1/
FIRST "Opioid" is FAR 2 BIG A BRUSH! It's HEROIN cut with NON RX foreign fentanyl killing people!
Its AMAZING what $60 can cause 2 arrive at your door as long as you call it research chemicals!
Take a look!
frictionstirwelding.en.ec21.com/CARFENTANILL99…
shenzhengpharm.com/products/THF-F…
Then there's #Kolodny!
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Its AMAZING what $60 can cause 2 arrive at your door as long as you call it research chemicals!
Take a look!
frictionstirwelding.en.ec21.com/CARFENTANILL99…
shenzhengpharm.com/products/THF-F…
Then there's #Kolodny!
2/
You're saying Kolodny what's Kolodny, right? Well bear with me and I'll tell you all about the man who ginned up the most recent version of "Opioids Bad" Crusade! There once was a man who Chief Medical Officer at one of the largest Rehab Businesses and one day out of the blue
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Doctors are no longer a driving part of the #OpioidHysteria. They never really were. Why why why are we still getting these stories instead of what’s really going on? Alt facts much? How very Trumpian. News media needs to take a good look in the mirror & start facing the truth.
Define “overprescribing” please. 91 ppl per day die from overdoses: from what exactly? Which meds? Multiple meds or just Opioids? God I’m fucking tired of this whole bs narrative still going on.
How about the painful stories of vulnerable ppl -disabled-Veterans-elderly- being cut off from #opioids & committing suicide b/c their pain is so bad?? #SuicideDue2Pain #PainKills
