Discover and read the best of Twitter Threads about #leiomyosarcoma
Most recents (2)
Today, I'm beginning my 5th year of living with stage 4 cancer.
Three years ago today, I was diagnosed with metastatic #leiomyosarcoma.
Four years ago tomorrow, I was misdiagnosed (the primary tumor in my thigh was dx'd as a DVT; the tiny nodules in my lungs were dismissed as benign scar tissue).
Four years ago tomorrow, I was misdiagnosed (the primary tumor in my thigh was dx'd as a DVT; the tiny nodules in my lungs were dismissed as benign scar tissue).
So now I've been living with #stage4cancer for (at least) four years, but I've only known I was living with it for three.
1. My great thanks to @sandrapdangelo & @WTapMD for elaborating on the $250,000 grant they got from @CureSarcoma for uterine #leiomyosarcoma. curesarcoma.org/uterine-leiomy… Their research will help people with other #sarcoma subtypes, too. more ...
2. @sandrapdangelo says grant will go toward 2 immunotherapy #ClinicalTrials. She hopes the first will open @sloan_kettering in late spring. The first will combine a CSF-1R (DCC-3014 deciphera.com/pipeline/dcc-3…) with #avelumab (#Bavencio en.wikipedia.org/wiki/Avelumab). more ...
3. @sandrapdangelo doesn't know when the second #ClinicalTrial will open, but it will combine a PARP inhibitor (en.wikipedia.org/wiki/PARP_inhi…) an immunotherapy drug that has not been chosen yet. "Other #sarcoma subtypes will be allowed to enroll," not just #leiomyosarcoma. more ...
