Discover and read the best of Twitter Threads about #PatientExperience
Most recents (16)
@MondayNightIBD @AaronBlocker_ 1/2 #IBDPoll1️⃣:
📊If you are/were a caregiver for an adolescent/young adult (AYA) with #IBD or are an AYA who transitioned from #PedsGI to adult GI for your #IBD care, how was that transition?
Pls share your #PatientExperience with #MondayNightIBD!!
📊If you are/were a caregiver for an adolescent/young adult (AYA) with #IBD or are an AYA who transitioned from #PedsGI to adult GI for your #IBD care, how was that transition?
Pls share your #PatientExperience with #MondayNightIBD!!
@MondayNightIBD @AaronBlocker_ 2/2 #IBDPoll2️⃣ #MondayNightIBD
Adolescent & young adults (& caregivers) who transtioned from #PedsGI to adult GI for #IBD care:
🚧 What did you find most difficult in the transition?
#Crohns #UlcerativeColitis
Adolescent & young adults (& caregivers) who transtioned from #PedsGI to adult GI for #IBD care:
🚧 What did you find most difficult in the transition?
#Crohns #UlcerativeColitis
@MondayNightIBD @AaronBlocker_ Just to share my personal story, I found my biggest barrier was navigating the different care coordination style amidst a major life transition that coincided with my #PedsGI to adult GI transition! 1/5
📣#GITwitter
Join⚕️@DCharabaty @AmyLightnerMD #DrMarlaDubinsky+ Brandon Pomish 4 #Crohns #PerianalFistula
🗓️#CPF #MNIBDWebinar Sat 2/11
🎯MultiD Mgmt
🎯Stem Cell Therapy
🎯#PatientExperience
🆓#CME👉bit.ly/CPF-MNIBD-CME
🗳️#IBDPolls👇
🔸Supported by an edu grant @TakedaPharma
Join⚕️@DCharabaty @AmyLightnerMD #DrMarlaDubinsky+ Brandon Pomish 4 #Crohns #PerianalFistula
🗓️#CPF #MNIBDWebinar Sat 2/11
🎯MultiD Mgmt
🎯Stem Cell Therapy
🎯#PatientExperience
🆓#CME👉bit.ly/CPF-MNIBD-CME
🗳️#IBDPolls👇
🔸Supported by an edu grant @TakedaPharma
1/#PreConvo #IBDPoll #Crohns #PerianalFistula
#MNIBDWebinar #CPF
🆓#CME🔗bit.ly/CPF-MNIBD-CME
🟢Where are you in your career?
#MNIBDWebinar #CPF
🆓#CME🔗bit.ly/CPF-MNIBD-CME
🟢Where are you in your career?
2/#PreConvo #IBDPoll 1️⃣
#MNIBDWebinar #Crohns #PerianalFistula #CPF
🆓#CME🔗bit.ly/CPF-MNIBD-Pre2
🟢The addition of which of the following to an anti-TNF agent is associated with a higher rate of #Crohns #PerianalFistula CPF healing vs the anti-TNF agent alone?
#MNIBDWebinar #Crohns #PerianalFistula #CPF
🆓#CME🔗bit.ly/CPF-MNIBD-Pre2
🟢The addition of which of the following to an anti-TNF agent is associated with a higher rate of #Crohns #PerianalFistula CPF healing vs the anti-TNF agent alone?
@MondayNightIBD 1a.
Welcome to an extra spooky #MNIBD #Back2Basics
🎃👻🎃👻🎃👻🎃👻🎃👻🎃
@JosephHabibi_MD and I will be discussing common myths in #IBD and doing our best to debunk them. Topics include:
🎃 Diet and supplement myths
🎃 Pregnancy and fertility myths
🎃 More surprise myths🔮
Welcome to an extra spooky #MNIBD #Back2Basics
🎃👻🎃👻🎃👻🎃👻🎃👻🎃
@JosephHabibi_MD and I will be discussing common myths in #IBD and doing our best to debunk them. Topics include:
🎃 Diet and supplement myths
🎃 Pregnancy and fertility myths
🎃 More surprise myths🔮
@MondayNightIBD @JosephHabibi_MD @dunleavy_katie @RomyChamoun @SanjeevaniTomar @DSTEINGIMD @BeniwalPatelMD 1b.
Shout out 📣 to all of the amazing #IBD #PatientAdvocates who helped make this happen:
@aboutIBD @nataliesparacio @mustbthemusic @Empoweringpts9 @DrTiffTaft @GutlessGlamour @IBDPassport @ownyourcrohns @bottomlineibd @GIdietitian @snehadave98 @LoriPlung @Youcantmakethi4
Shout out 📣 to all of the amazing #IBD #PatientAdvocates who helped make this happen:
@aboutIBD @nataliesparacio @mustbthemusic @Empoweringpts9 @DrTiffTaft @GutlessGlamour @IBDPassport @ownyourcrohns @bottomlineibd @GIdietitian @snehadave98 @LoriPlung @Youcantmakethi4
@MondayNightIBD @JosephHabibi_MD @dunleavy_katie @RomyChamoun @SanjeevaniTomar @DSTEINGIMD @BeniwalPatelMD @aboutIBD @nataliesparacio @mustbthemusic @Empoweringpts9 @DrTiffTaft @GutlessGlamour @IBDPassport @ownyourcrohns @bottomlineibd @GIdietitian @snehadave98 @LoriPlung @Youcantmakethi4 @shaina_sekhri @LambergMorgan @goodmra1 @KrugCleveland @john_damianosMD @AustinChiangMD @DrsMeena 1c.
See if you can find all of the spooky #IBD words in our #MondayNightIBD word search 👇
🎃👻🎃👻🎃👻🎃👻🎃👻
See if you can find all of the spooky #IBD words in our #MondayNightIBD word search 👇
🎃👻🎃👻🎃👻🎃👻🎃👻
The annual @CareQualityComm #StateOfCare report’s out today, just in time to focus minds as decisions are made about future health and care funding. Here’s my thread, picking out some of the nuggets that have got me thinking. 🧵 1/10
cqc.org.uk/publication/st…
cqc.org.uk/publication/st…
2/10 Overall #StateOfCare message: gridlocked care, growing risks of harm and a need to tackle inequalities. Summarised here in the foreword. Stresses need for workforce investment at system level. Rightly says need to understand people’s experiences overall not in isolation.
3/10 Good to see this reminder in #StateOfCare that ICSs need to use insights from local people to drive and track improvement. Key role for #Healthwatch and #VCSFE organisations there, I’d say. Very relevant to the need for shared learning described in section on collaboration.
@rebelliousgut @MondayNightIBD @southasianIBD @ibdesis @Empoweringpts9 @DCharabaty @crohnsbabble @LivingWithUmeed @vkckiranpullela @TheMaveilousGut @dunung_ruchita 1/ I'm Tina from 🇺🇸 co-founder of Team @ibdesis. We are proud to lead #PatientExperience on @MondayNightIBD to discuss specific aspects of #SouthAsianIBD experience. We hope to improve care & reduce disparities in our community around the 🌍 thru @southasianIBD. #MondayNightIBD
@rebelliousgut @MondayNightIBD @southasianIBD @ibdesis @Empoweringpts9 @DCharabaty @crohnsbabble @LivingWithUmeed @vkckiranpullela @TheMaveilousGut @dunung_ruchita 2/ Even though my dad suffered from #Crohns, when I presented with #IBS #constipation, #GERD, joint pains & eye issues as a child, no one made the connection or escalated it to a gastroenterologist. #MondayNightIBD #SouthAsianIBD
@rebelliousgut @MondayNightIBD @southasianIBD @ibdesis @Empoweringpts9 @DCharabaty @crohnsbabble @LivingWithUmeed @vkckiranpullela @TheMaveilousGut @dunung_ruchita 3/ When my dad passed from #CRC, my family went into poverty & couldn't afford health insurance. Though I was symptomatic as a child, I didn't have a #colonoscopy until 22 when I got my 1st job. That's when I received my very delayed #IBD diagnosis. #MondayNightIBD #SouthAsianIBD
@rebelliousgut @MondayNightIBD @southasianIBD @ibdesis @Empoweringpts9 @DCharabaty @ownyourcrohns @LivingWithUmeed @vkckiranpullela @TheMaveilousGut @dunung_ruchita 1/ I'm Sharan from 🇬🇧, co-founder Team @ibdesis. We are proud to lead #PatientExperience on @mondaynightibd to discuss specific aspects of #SouthAsianIBD experience. We hope to improve care for our community around the 🌍. #MondayNightIBD
@rebelliousgut @MondayNightIBD @southasianIBD @ibdesis @Empoweringpts9 @DCharabaty @ownyourcrohns @LivingWithUmeed @vkckiranpullela @TheMaveilousGut @dunung_ruchita 2/ My initial diagnosis came after months of going back & forth w my GP who was reluctant to refer to a specialist because they were certain that my symptoms couldn't be due to #IBD. In their own words, "#SouthAsians don't get IBD" #MondayNightIBD #SouthAsianIBD
@rebelliousgut @MondayNightIBD @southasianIBD @ibdesis @Empoweringpts9 @DCharabaty @ownyourcrohns @LivingWithUmeed @vkckiranpullela @TheMaveilousGut @dunung_ruchita 3/ This delay led to extreme weight loss and worsening of symptoms to the point where I was unable to get myself out of bed. I was admitted into hospital with my weight down to 28kgs, from 38kgs just months before.
#MondayNightIBD #SouthAsianIBD
#MondayNightIBD #SouthAsianIBD
@MondayNightIBD @southasianIBD @ibdesis @Empoweringpts9 @DCharabaty @ownyourcrohns @crohnsbabble @LivingWithUmeed @vkckiranpullela @TheMaveilousGut @dunung_ruchita 📣 #IBD patients & caregivers:
#IBDPoll 1️⃣
📊Thinking abt your IBD needs, what's been the biggest hurdle to your care?
📝 In the replies, elaborate. What’s helped your care?
Please share your #PatientExperience w #MondayNightIBD 👇🏽
👨👩👧👦=Family
👩🏼🤝👩🏽=Friends
🥼=Specialist
#IBDPoll 1️⃣
📊Thinking abt your IBD needs, what's been the biggest hurdle to your care?
📝 In the replies, elaborate. What’s helped your care?
Please share your #PatientExperience w #MondayNightIBD 👇🏽
👨👩👧👦=Family
👩🏼🤝👩🏽=Friends
🥼=Specialist
@MondayNightIBD @southasianIBD @ibdesis @Empoweringpts9 @DCharabaty @ownyourcrohns @crohnsbabble @LivingWithUmeed @vkckiranpullela @TheMaveilousGut @dunung_ruchita #MondayNightIBD #PatientExperience
#IBDPoll 2️⃣
🧐Thinking about your culture’s expectations
📊 Have you tried Complementary and Alternative (CAM) Therapies (ex: ayurveda, homeopathy)?
What drove you to try these therapies? Please share your experience.
SE=side effects
#IBDPoll 2️⃣
🧐Thinking about your culture’s expectations
📊 Have you tried Complementary and Alternative (CAM) Therapies (ex: ayurveda, homeopathy)?
What drove you to try these therapies? Please share your experience.
SE=side effects
@MondayNightIBD @southasianIBD @ibdesis @Empoweringpts9 @DCharabaty @ownyourcrohns @crohnsbabble @LivingWithUmeed @vkckiranpullela @TheMaveilousGut @dunung_ruchita Thank you @MondayNightIBD for shining a spotlight on 🌏 #SouthAsianIBD pt experience!
I'm Madhura from 🇮🇳, co-founder Team @ibdesis. We are proud to lead #PatientExperience on #MondayNightIBD!
We hope to improve care for our community around the 🌍 through @SouthAsianIBD.
I'm Madhura from 🇮🇳, co-founder Team @ibdesis. We are proud to lead #PatientExperience on #MondayNightIBD!
We hope to improve care for our community around the 🌍 through @SouthAsianIBD.
🧵One of the tools we use at FLC is 'The Thinking Environment'
"The most valuable thing we can offer each other is the framework in which to think for ourselves"
#NancyKline
The #10Components that help generate independent thinking
👇🏾1/10 a short intro on each #MedTwitter
"The most valuable thing we can offer each other is the framework in which to think for ourselves"
#NancyKline
The #10Components that help generate independent thinking
👇🏾1/10 a short intro on each #MedTwitter
1 ATTENTION
"The quality of your attention determines the quality of other people's thinking "
#NancyKline
#timetothink #thethinkingenvironment #coaching #MedTwitter #importantconversations
"The quality of your attention determines the quality of other people's thinking "
#NancyKline
#timetothink #thethinkingenvironment #coaching #MedTwitter #importantconversations
2 EQUALITY
"Even in a hierarchy people can be equal as thinkers" - #NancyKline
#timetothink #thethinkingenvironment #MedTwitter #importantconversations #FrontlineCommunication #HealthcareEducation #communicationskills
"Even in a hierarchy people can be equal as thinkers" - #NancyKline
#timetothink #thethinkingenvironment #MedTwitter #importantconversations #FrontlineCommunication #HealthcareEducation #communicationskills
Pls join us in welcoming @JohnEbbenMDPhD to #TumorBoardTuesday!! 🎊
Dr Ebben is an onc fellow from WI, interested in🧬med & immunotherapy. He’ll also debate🧀curds & the best🍦custard in WI! He’ll be assisting with case wrap up🎀
We’re excited to have him!! #TBTFellow 1/17
Dr Ebben is an onc fellow from WI, interested in🧬med & immunotherapy. He’ll also debate🧀curds & the best🍦custard in WI! He’ll be assisting with case wrap up🎀
We’re excited to have him!! #TBTFellow 1/17
2/17 #TumorBoardTuesday Thursday Case🎀(08/24/21)
Bringing #ctDNA to bear to improve pts🙌🏽 @pashtoonkasi shows us how we can♻️ 🎯therapies to extend survival.
We go deep -🔬molecular biology➡️clinical trials➡️pt case.
👉🏽Don’t forget🆓#CME credit: bit.ly/3B9i6Wd
Bringing #ctDNA to bear to improve pts🙌🏽 @pashtoonkasi shows us how we can♻️ 🎯therapies to extend survival.
We go deep -🔬molecular biology➡️clinical trials➡️pt case.
👉🏽Don’t forget🆓#CME credit: bit.ly/3B9i6Wd
3/17 #TumorBoardTuesday Thursday Case🎀(08/24/21)
📚We captured as much of @pashtoonkasi's discussion as we could in this moment:
#ColorectalCancer #CRC #OncTwitter
twitter.com/i/events/14288…
📚We captured as much of @pashtoonkasi's discussion as we could in this moment:
#ColorectalCancer #CRC #OncTwitter
twitter.com/i/events/14288…
Welcome to #TumorBoardTuesday
Hello Everyone,
I’m Manju George, a stage 3b rectal cancer survivor
I was diagnosed in 2017 & I wasn’t yet 45 then
Are you excited to discuss #CtDNA testing?
Let's get started..
But first things 1st
Tell us about you
#PatientExperience #CRCSM
Hello Everyone,
I’m Manju George, a stage 3b rectal cancer survivor
I was diagnosed in 2017 & I wasn’t yet 45 then
Are you excited to discuss #CtDNA testing?
Let's get started..
But first things 1st
Tell us about you
#PatientExperience #CRCSM
My tumor
-In the upper rectum near the recto-sigmoid
Clean CAP CT scan & MRI pelvis
CEA 1.0 at dx
LAR sx 1st
Stage 3b rectal, MSS, BRAF WT
No chemo-RT
4 cycles of CAPOX
Clean scans at the end of treatment🎉🎉
What about you?
#TumorBoardTuesday #CRCSM #CtDNA #LiquidBiopsies
-In the upper rectum near the recto-sigmoid
Clean CAP CT scan & MRI pelvis
CEA 1.0 at dx
LAR sx 1st
Stage 3b rectal, MSS, BRAF WT
No chemo-RT
4 cycles of CAPOX
Clean scans at the end of treatment🎉🎉
What about you?
#TumorBoardTuesday #CRCSM #CtDNA #LiquidBiopsies
Survivorship--Different parts, very nice diagram from @CancerSurvSM
Great patient worksheet resource here--smhs.gwu.edu/cancercontrolt…
#TumorBoardTuesday #PatientExperience #CtDNA
Great patient worksheet resource here--smhs.gwu.edu/cancercontrolt…
#TumorBoardTuesday #PatientExperience #CtDNA
#TumorBoardTuesday
THANK YOU to @KristenCiombor for leading us through a🗣️on pMMR CRC w/ dMMR liver mets
AND thank you for @fireflyann for leading our #PatientExperience 🗣️as well
👉Don’t forget your🆓#CME credit-answer 3 quick❓
Here's the postest🔗
surveymonkey.com/r/DMN786G
THANK YOU to @KristenCiombor for leading us through a🗣️on pMMR CRC w/ dMMR liver mets
AND thank you for @fireflyann for leading our #PatientExperience 🗣️as well
👉Don’t forget your🆓#CME credit-answer 3 quick❓
Here's the postest🔗
surveymonkey.com/r/DMN786G
#TumorBoardTuesday
Thursday Case🎀(Reverse jet-lag edition✈️)
(07/06 and 07/07/21)
We🗣️ #ColorectalCancer and:
✅1st line Tx for dMMR met CRC
✅✔️ing MMR status EVEN in patients with Lynch Syndrome
✅Tumor heterogeneity
We captured the🗣️in this moment:
twitter.com/i/events/14131…
Thursday Case🎀(Reverse jet-lag edition✈️)
(07/06 and 07/07/21)
We🗣️ #ColorectalCancer and:
✅1st line Tx for dMMR met CRC
✅✔️ing MMR status EVEN in patients with Lynch Syndrome
✅Tumor heterogeneity
We captured the🗣️in this moment:
twitter.com/i/events/14131…
#TumorBoardTuesday
Thursday Case🎀
(From 07/06 and 07/07/21)
In the #PatientExperience 🗣️we added:
✅Defining the "lingo", e.g.
👉dMMR = MSI-high
👉pMMR = MS-stable
✅Ensuring tumor testing - and🗣️results w/ docs
✅Scanxiety
Also captured in this moment:
twitter.com/i/events/14132…
Thursday Case🎀
(From 07/06 and 07/07/21)
In the #PatientExperience 🗣️we added:
✅Defining the "lingo", e.g.
👉dMMR = MSI-high
👉pMMR = MS-stable
✅Ensuring tumor testing - and🗣️results w/ docs
✅Scanxiety
Also captured in this moment:
twitter.com/i/events/14132…
Gather around with a snack and ☕️!! We’ll begin with @fireflyann in ≈ 30mins!!
Please share and invite other members of the cancer community!
#TumorBoardTuesday #PatientExperience #ColorectalCancer @MPishvaian @KristenCiombor @Empoweringpts9
Please share and invite other members of the cancer community!
#TumorBoardTuesday #PatientExperience #ColorectalCancer @MPishvaian @KristenCiombor @Empoweringpts9
A couple of reminders.
If you need medical advice, or questions about your treatment or your personal care, please speak with your in-person care team.
#TumorBoardTuesday #PatientExperience #ColorectalCancer #CRC 1/3 @fireflyann
If you need medical advice, or questions about your treatment or your personal care, please speak with your in-person care team.
#TumorBoardTuesday #PatientExperience #ColorectalCancer #CRC 1/3 @fireflyann
Reminder:
Everyone responds to treatment different, please be mindful of other’s experiences.
#TumorBoardTuesday #PatientExperience #ColorectalCancer @fireflyann 2/3
Everyone responds to treatment different, please be mindful of other’s experiences.
#TumorBoardTuesday #PatientExperience #ColorectalCancer @fireflyann 2/3
#PatientCentric care, #PtExperience #Tokenism, #HoldingSpace #WeAreBetterTogether ⚠️ long thread.
Recently I attended a meeting of an organization whose focus is in improving #healthcare. This is a highly respected organization. One ☝🏼 of their founding principles is the 1/
Recently I attended a meeting of an organization whose focus is in improving #healthcare. This is a highly respected organization. One ☝🏼 of their founding principles is the 1/
engagement of various #stakeholders including #patients and #caregivers. This was not the 1st meeting of this org. I have attended. I walked away from this particular meeting sad, frustrated & a bit angry. The topic was on #patientcentric care. A topic that is near & dear 2/
to me. The caliber of individuals involved was spectacular; academics, researchers, consultants. As I scrolled through participants as well as listened to the conversation and watched the comments come across the screen I was enthralled with the dialogue however 3/
Over the next month I'll be sharing thoughts from the 32 articles in our new special issue of @PXJournal: Sustaining a Focus on #HumanExperience in the Face of #COVID19.
Generous contributions of action & hope from authors around the world. Stay tuned:
pxjournal.org/journal/
Generous contributions of action & hope from authors around the world. Stay tuned:
pxjournal.org/journal/
Starting my review of @PXJournal special issue with our editorial "A Commitment to Hope" co-authored by our Assoc Editor Geoffrey Silvera of @AuburnU.
"In this moment, the humanity of healthcare continues to shine."
Read more:
pxjournal.org/journal/vol7/i…
#HumanExperience #COVID19
"In this moment, the humanity of healthcare continues to shine."
Read more:
pxjournal.org/journal/vol7/i…
#HumanExperience #COVID19
Next in @PXJournal: #Leadership matters: A conversation w/ Dr. @JamesEKHildreth
Need to start having honest conversations. They're difficult to have about who we are, what motivates us, but the results could be really powerful.
pxjournal.org/journal/vol7/i…
#COVID19 #humanexperience
Need to start having honest conversations. They're difficult to have about who we are, what motivates us, but the results could be really powerful.
pxjournal.org/journal/vol7/i…
#COVID19 #humanexperience
Inspiring story shared by @SafiBahcall on #PatientExperience
Brian Druker was denied tenure because his work was felt to lack 'potential'. Drug he discovered: Gleevec (imatinib).
Life expectancy of pts with chronic myeloid leukemia today: normal.
#JPMHC20 #JPM20
Brian Druker was denied tenure because his work was felt to lack 'potential'. Drug he discovered: Gleevec (imatinib).
Life expectancy of pts with chronic myeloid leukemia today: normal.
#JPMHC20 #JPM20
A few years ago Safi attended a research meeting sponsored by a patient foundation group. One of the first people he met after I in hotel lobby started asking him detailed questions about the science behind the cancer drug they were working on at the time
(he was running a biotech co). After they were done speaking, he asked the other person "What university are you from?"
"I'm not with any university," he said. "I'm a patient. I was diagnosed seven years ago and given 6 months to live.
"I'm not with any university," he said. "I'm a patient. I was diagnosed seven years ago and given 6 months to live.
#? Thinking about #surpriseMedicalBills ...
- Does any U.S. agency have authority over this?
- How/why is this business practice different in medicine than other industries?
- Is there a national registry of hospitals who do and don't do it?
1/
- Does any U.S. agency have authority over this?
- How/why is this business practice different in medicine than other industries?
- Is there a national registry of hospitals who do and don't do it?
1/
One thing's certain: EVERYONE talking about importance of #patientExperience damn well better have an ironclad policy against #surpriseMedicalBills and against suing patients.
Patient experience doesn't end at discharge. /end
Patient experience doesn't end at discharge. /end
