Discover and read the best of Twitter Threads about #PRSS1
Most recents (2)
Almost 25 years ago I entered the world 🌍 of #raredisease when 1st my husband was dx w #PRSS1 & then our children.
What I’ve learned is #HealthcareInAmerica is brutal & often #harms those most in need.
The system is broken.
There is no disguising it.
I believe that our 1
What I’ve learned is #HealthcareInAmerica is brutal & often #harms those most in need.
The system is broken.
There is no disguising it.
I believe that our 1
#Healthcare system truly only benefits a small populous; individuals that are mainly #healthy & don’t belong to a marginalized group.
There are monumental system issues that need to be addressed that impact #medicalprofessionals ability to provide necessary 2
There are monumental system issues that need to be addressed that impact #medicalprofessionals ability to provide necessary 2
care. I understand that. I believe that #patients, #caregivers #medicalprofessionals need to work in collaboration to push back on the systemic issues that plague the system. I absolutely can give & find grace in many situations.
What I have no time for is the void of 3/
What I have no time for is the void of 3/
At @RepJudyChu & @RepWalorski could you please provide additional information on the congressional caucus held on July 24 on #chronicpain? The invite for this indicated that individuals that have #chronicpain are responsible for current #opioidepedemic. Even with 1/ 
#patients with #chronicpain being ripped of opioid pain meds, with the number of prescriptions at all time low, SUD & overdoses continue to rise. This is NOT caused by those w #chronicpain. Respectfully, we have been harmed by such rhetoric used in your invitation 2/
The language in your invitation perpetuates the stigma those with #chronicpain face which impacts access to care. Meet my family (older pictures) My husband & children had/have #hereditarypancreatitis #PRSS1. A rare condition in whic one of symptoms is horrific pain 3
