Discover and read the best of Twitter Threads about #JPouch
Most recents (4)
@rebelliousgut @MondayNightIBD @southasianIBD @ibdesis @Empoweringpts9 @DCharabaty @crohnsbabble @LivingWithUmeed @vkckiranpullela @TheMaveilousGut @dunung_ruchita 1/ I'm Tina from 🇺🇸 co-founder of Team @ibdesis. We are proud to lead #PatientExperience on @MondayNightIBD to discuss specific aspects of #SouthAsianIBD experience. We hope to improve care & reduce disparities in our community around the 🌍 thru @southasianIBD. #MondayNightIBD
@rebelliousgut @MondayNightIBD @southasianIBD @ibdesis @Empoweringpts9 @DCharabaty @crohnsbabble @LivingWithUmeed @vkckiranpullela @TheMaveilousGut @dunung_ruchita 2/ Even though my dad suffered from #Crohns, when I presented with #IBS #constipation, #GERD, joint pains & eye issues as a child, no one made the connection or escalated it to a gastroenterologist. #MondayNightIBD #SouthAsianIBD
@rebelliousgut @MondayNightIBD @southasianIBD @ibdesis @Empoweringpts9 @DCharabaty @crohnsbabble @LivingWithUmeed @vkckiranpullela @TheMaveilousGut @dunung_ruchita 3/ When my dad passed from #CRC, my family went into poverty & couldn't afford health insurance. Though I was symptomatic as a child, I didn't have a #colonoscopy until 22 when I got my 1st job. That's when I received my very delayed #IBD diagnosis. #MondayNightIBD #SouthAsianIBD
@MondayNightIBD @SobiaMujtabaMD @FezaRemziMD @DCharabaty 1/ 35 yo F panUC on IFX 10mg q4wk, admitted with abdo pain, hematochezia, malaise. T 39 BP 95/63 HR 110 FCP 900 mcg/g. Abdo distended, TTP; CT: colonic wall thickening+edematous mucosa. Cdiff neg; WBC 15, Hb 6. No improvement despite IVCS+Abx. Which surgery is indicated #B2BPoll
@MondayNightIBD @SobiaMujtabaMD @FezaRemziMD @DCharabaty 2/ Indications for colectomy in UC:
📌Elective:
📍UC refractory to medical Rx
📍Steroid-dependant UC
📍Unresectable dysplasia, CA
📍Complications from medical Rx
📌Emergency:
📍Toxic megacolon
📍Fulminant colitis
📍Perforation
📍Severe Bleeding
📌Elective:
📍UC refractory to medical Rx
📍Steroid-dependant UC
📍Unresectable dysplasia, CA
📍Complications from medical Rx
📌Emergency:
📍Toxic megacolon
📍Fulminant colitis
📍Perforation
📍Severe Bleeding
@MondayNightIBD @SobiaMujtabaMD @FezaRemziMD @DCharabaty 3/ What is a toxic megacolon?
🔺Transverse colon > 6cm
🔺AND one:
T>101.5° F
HR> 120
WBC>10.5
anemia
🔺AND one:
Dehydration
altered mental status
electrolyte abnormality
hypotension
💡Recall our #B2B tweetorial on ASUC👇🏽👇🏽👇🏽
🔺Transverse colon > 6cm
🔺AND one:
T>101.5° F
HR> 120
WBC>10.5
anemia
🔺AND one:
Dehydration
altered mental status
electrolyte abnormality
hypotension
💡Recall our #B2B tweetorial on ASUC👇🏽👇🏽👇🏽
🗣Not having a colon doesn’t change immune suppression.
❌These ideas do not correlate until another ingredient is added. Stop spreading this myth!
#ostomy #jpouch #colectomy
❌These ideas do not correlate until another ingredient is added. Stop spreading this myth!
#ostomy #jpouch #colectomy
More info from @SchwartzbergMD expressing ❌connection (unless underlying conditions/meds) between *just* colectomy and immune suppression. 👇🏽
Here’s more information about susceptibility & #ostomy/#Jpouch from @HolubarStefan. Ostomates (or jpouchers) don’t have a lower immune system *just* because they have an ostomy, BUT it’s imperative to keep strict hygiene. #IPAA https://t.co/bkeqMkcYRv
I don’t know what I would do if I didn’t find a whole online community of #JPouch-ers.
Every time I look up some symptom to see if it’s related to my pouch, I find hundreds of others with the same problem, related to their pouch.
And it’s all things doctors never told me. 1/
Every time I look up some symptom to see if it’s related to my pouch, I find hundreds of others with the same problem, related to their pouch.
And it’s all things doctors never told me. 1/
The thing with a #JPouch is, for those with colitis, it’s seen as a cure. No colon, no problem. They warn you that you can likely develop Crohns later on. They tell you about the occasional inflammatory pouchitis. 2/
CN ////// menstruation, fertility
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But what about severe period cramps and extra digestive trouble during your cycle? What about lower back pain radiating from your pouch or as a result of surgery? What about difficulty conceiving due to internal surgery scars? 3/
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But what about severe period cramps and extra digestive trouble during your cycle? What about lower back pain radiating from your pouch or as a result of surgery? What about difficulty conceiving due to internal surgery scars? 3/
