Discover and read the best of Twitter Threads about #Endometriosis
Most recents (24)
Thoughts on #endometriosis from the perspective of medical education đ§”
USMLE and shelf examinations make endo seem super easy. Itâs a young woman with pelvic pain & some combo of infertility, dyspareunia, and dyschezia
Throw some OCPs at the problem and boom, case closed
Throw some OCPs at the problem and boom, case closed
Students donât talk about endo as a cause of urinary symptoms. Many have it on their list as a cause of heavy abnormal bleeding.
Most have no idea that MRI is useful for diagnosis and few know when to refer for surgery or how to manage patients after surgery
Most have no idea that MRI is useful for diagnosis and few know when to refer for surgery or how to manage patients after surgery
For almost 15 years #endo compromised my social, professional, personal life and mental health. Iâm more than lucky to have found great professionals along my way, but itâs never over. Itâs a daily struggle that has no cure #MoreThan1in10 @Endofound @SWHR #EndometriosisAwareness
In my case, #endo represents almost 15 years of fatigue, excessive bleeding, visits to the ER in the middle of the night, tons of painkillers, multiple failed treatments, thousands of $ spent and endless sleepless nights in pain #morethan1in10 @Endofound @SWHR
2022 was the year I went to my doctorâs office and told him I couldnât it anymore, I needed stronger painkillers. His answer: âyouâre already taking the strongest pain relievers, the next thing would be opioids and I wonât let you go thereâ. @SWHR @Endofound #morethan1in10
I started am now in #perimenopause after losing both my ovaries to #Endometriosis
There is nothing that breaks me more than the thought of not being able to conceive and carry a child of my own in my uterus đ¶đœ
Thisđ§”is about navigating the new season which is a neglected topic
There is nothing that breaks me more than the thought of not being able to conceive and carry a child of my own in my uterus đ¶đœ
Thisđ§”is about navigating the new season which is a neglected topic
Our ovaries produce eggs for fertilization and also make the hormones (estrogen and progesterone) that play an important role in reproductive development and menstruation.
If, like me, you lose your ovaries early it increases our risk of osteoporosis and heart disease.
If, like me, you lose your ovaries early it increases our risk of osteoporosis and heart disease.
I now appreciate the role my ovaries played in contributing to the good quality of life. I didnât have to worry about mood changes, vaginal and bladder problems, sexual function, fertility, hot flashes, sleep problems etc.
#women with #endometriosis have a higher risk of #stroke
1. Endometriosis is a common cause of #pelvic #pain and is known to increase the risk of #coronary artery disease (CAD). A recent study looked at the association of endometriosis and stroke.
#MedTwitter #gynecologist
1. Endometriosis is a common cause of #pelvic #pain and is known to increase the risk of #coronary artery disease (CAD). A recent study looked at the association of endometriosis and stroke.
#MedTwitter #gynecologist
2. Women with laparoscopically confirmed endometriosis had a 34% greater risk of stroke as compared to those without a history of endometriosis.
3. Of the total association of endometriosis
with risk of stroke, the largest proportion was attributed to hysterectomy/oophorectomy (39% mediated) and hormone therapy (16% mediated).
with risk of stroke, the largest proportion was attributed to hysterectomy/oophorectomy (39% mediated) and hormone therapy (16% mediated).
I can relate with the women sharing their stories #BelowTheBelt so many visits to the ER that I remember the number of times I felt dismissed because "it was normal" bring tears to my eyes...
I wonder whether an earlier diagnosis and treatment would have saved my ovaries...?
4 surgeries later and having lost my ovaries and any chance of conceiving naturally crushes me every day
The whole system is broken
The whole system is broken
1/4
Qâs for your #endometriosis surgeon:
- Is Endo your primary specialism?
- Do you excise or ablate?
- How many surgeries do you do per year?
- How many complex surgeries do you do per year (incl bowel resection, thoracic etc)
- What are your complication rates?
Qâs for your #endometriosis surgeon:
- Is Endo your primary specialism?
- Do you excise or ablate?
- How many surgeries do you do per year?
- How many complex surgeries do you do per year (incl bowel resection, thoracic etc)
- What are your complication rates?
2/4
- Do you have a multidisciplinary team?
-Do you record/take photos & can I have copies?
- What areas of the body do you check?
- Will you take tissue for biopsy?
- Is there any case where you wouldnât remove Endo?
- If so do you refer to a surgeon with the right skill set?
- Do you have a multidisciplinary team?
-Do you record/take photos & can I have copies?
- What areas of the body do you check?
- Will you take tissue for biopsy?
- Is there any case where you wouldnât remove Endo?
- If so do you refer to a surgeon with the right skill set?
3/4
- What is the after care & pain management plan?
- When will I have a follow up appointment?
Things to note. Expert excision is đ, ablation means no samples for pathology & is a poor technique (high recurrence), no surgery is better than bad surgery.
- What is the after care & pain management plan?
- When will I have a follow up appointment?
Things to note. Expert excision is đ, ablation means no samples for pathology & is a poor technique (high recurrence), no surgery is better than bad surgery.
đŁ âWhy am I in so much pain? Why is no one listening to me?â
It took nearly two decades for Chetna Mistry to be diagnosed with #endometriosis. Charities are calling for more research into womenâs health so others donât suffer a similar experience.
nationalworld.com/health/woman-1âŠ
It took nearly two decades for Chetna Mistry to be diagnosed with #endometriosis. Charities are calling for more research into womenâs health so others donât suffer a similar experience.
nationalworld.com/health/woman-1âŠ
When Chetna Mistry was in her early 20s, she started suffering from extremely painful periods.
She visited her GP, who told her it was normal. But the pain was so bad that she couldnât go out with friends, struggled to survive a day at work, and frequently ended up bed-bound.
She visited her GP, who told her it was normal. But the pain was so bad that she couldnât go out with friends, struggled to survive a day at work, and frequently ended up bed-bound.
âI just wanted to know what was happening to me,â Chetna told @NationalWorld. âWhy am I in so much pain? Why is no one else experiencing this? Why is no one listening to me?â
Chetna returned to her GP, and the solution was to trial her on contraceptive pills and painkillers.
Chetna returned to her GP, and the solution was to trial her on contraceptive pills and painkillers.
With all the recent media coverage of #endometriosis (which is much appreciated) there is a lot of misinformation which has potential for harm. My inbox is filling with dispair and hopelessness. While #endometriosis is a chronic condition, there is hope. Another đ§”
Excision surgery can remove the disease and improve quality of life and in some cases fertility. There is always a chance of recurrence (not quantified in the scientific literature) but it is lower than with ablation due to the meticulous removal of *all* disease.
Over 70% of women with #endometriosis will conceive. This figure may be higher with disease removal and assisted techniques such as IVF, donor egg, donor embryo etc.
I've seen a few people ask why is #endometriosis on @rteliveline such a big deal?
Why has the conversation stirred up such emotion?
Why do we bother?
A wee thread đ§”
Why has the conversation stirred up such emotion?
Why do we bother?
A wee thread đ§”
In Ireland, like the rest of the world, #endometriosis takes an average of 9 years to diagnose. Longer if you present under the age of 25 and if fertility is not an immediate concern. I've met many women who have been misdiagnosed for over 20 years.
During this time many are misdiagnosed with mental health issues, attention seeking, IBS, painful periods, cystitis etc
This costs both the individual and the health system time and money.
The healthcare deterioration in this time can be devastating to the woman.
This costs both the individual and the health system time and money.
The healthcare deterioration in this time can be devastating to the woman.
Some resources for #Endometriosis as have been asked a few times following @rteliveline coverage.
List of resources in this thread here threadreaderapp.com/thread/1490764âŠ
List of resources in this thread here threadreaderapp.com/thread/1490764âŠ
Additional information on linktr.ee/Kathleen_m_king
Lots of discussion about lack of advancement in women's health
Here is the thing. We will NOT advance reproductive/pregnancy/women's health science by continuing to do clinical trials that are NOT based on fundamental mechanisms that drive health & disease
hang on...đ§”đ§”đ§”
1/
Here is the thing. We will NOT advance reproductive/pregnancy/women's health science by continuing to do clinical trials that are NOT based on fundamental mechanisms that drive health & disease
hang on...đ§”đ§”đ§”
1/
Let me explain:
Millions (millions)đČ have been spent to perform clinical trials to decrease adverse pregnancy outcomes such as #preeclampsia
Trials on Vitamin C, E, magnesium, aspirin, calcium
Perhaps, you might be thinking--those are pretty generic interventions đ
2/
Millions (millions)đČ have been spent to perform clinical trials to decrease adverse pregnancy outcomes such as #preeclampsia
Trials on Vitamin C, E, magnesium, aspirin, calcium
Perhaps, you might be thinking--those are pretty generic interventions đ
2/
And you would be right. They are.
Vit C & E clinical trial was based on concept that there is evidence of oxidative stress in placentas from preeclamptic individuals
OK. Yes, but oxidative stress is a pretty ubiquitous biological event
3/
Vit C & E clinical trial was based on concept that there is evidence of oxidative stress in placentas from preeclamptic individuals
OK. Yes, but oxidative stress is a pretty ubiquitous biological event
3/
Iâm working on a piece that will expose an invisible epidemic that regular working class people know all to well. Media and society ignore it, because they donât want to address the complex, often absurd inequities of the US medical system. I had recently had surgery (1/3)
abdominal wall #endometriosis excision (a procedure done by only 7 Drs in USA & NONE take insurance!) Iâm #disabled on Medicare but they wonât cover this, theyâll only pay to remove my uterus! But theyâll pay for men to get boner pills! Iâm rejecting the #mesh they placed. (2/3)
35yrs of chronic illness & pain Iâve seen the classism racism sexism capitalism ableism & patriarchy in the US med system is literally & figuratively crippling us. Itâs gross that we have to do this for basic #HumanRights but if youâre able please help at my links in 4 (3/3)
Using PEMF therapy to treat pain is recognised as being very effective. There are many studies out there treating pain from multiple causes. Here we see its uses in managing pelvic pain
pubmed.ncbi.nlm.nih.gov/7531030/
pubmed.ncbi.nlm.nih.gov/7531030/
#Endometriosis is considered a chronic condition with surgery being the only real possibility. PEMF therapy is good at managing chronic conditions. Weâve seen it with tinnitus and osteoporosis
nicecare.uk/endometriosis/
nicecare.uk/endometriosis/
PEMF therapy works to normalise the immune system and bring the disease under control. The affected area becomes smaller, and symptoms reduced. This is also true in the case of injury and recovery from surgery.
pubmed.ncbi.nlm.nih.gov/29632855/
pubmed.ncbi.nlm.nih.gov/29632855/
In honor of Endometriosis awareness month Iâm shedding light on a disease that affects more than 10% of women around the world.
Not many people know but in February of 2020 I was diagnosed with stage 4 endometriosis after years of suffering and doctors dismissing my concerns. Before I was diagnosed I didnât know anyone with this condition
This past February, I had my second laparoscopy surgery and through it all I thank God and am super appreciative of all the support I received from friends and family during my recovery process.
#endometriosis #endo #endometriosisawareness
#endometriosisawarenessmonth
#endometriosis #endo #endometriosisawareness
#endometriosisawarenessmonth
Me taking my meds.
13 yr old son, "Mom, dang you take a lot of pills. Why? *pinball machine subject change* Turning Red was so embarrassing. Talking about period stuff for girls and middle school drama -cringe."
Me, "Get in the van you're coming with me to run errands." 1/
13 yr old son, "Mom, dang you take a lot of pills. Why? *pinball machine subject change* Turning Red was so embarrassing. Talking about period stuff for girls and middle school drama -cringe."
Me, "Get in the van you're coming with me to run errands." 1/
Him, "Ugh, ok."
Me, "I need you to know WHY I'm going to tell you these things. I want you to 1 -be a better man, 2 - be a good partner if you marry a woman, 3 - be a good dad, and 4 - be more understanding of the world in general."
Him, "Huh?" 2/
Me, "I need you to know WHY I'm going to tell you these things. I want you to 1 -be a better man, 2 - be a good partner if you marry a woman, 3 - be a good dad, and 4 - be more understanding of the world in general."
Him, "Huh?" 2/
Me, "Do you think the reason Turning Red felt awkward was that it was dealing with subjects that aren't openly talked about without embarrassment?"
Him, "Yeah, probably."
Me, "The awkward subject you mentioned is partly why I take so many pills." 3/
Him, "Yeah, probably."
Me, "The awkward subject you mentioned is partly why I take so many pills." 3/
In honor of #EndometriosisAwarenessMonth: This is for the #MedTwitter community - especially #OBGYNTwitter - with the hope that it will help at least 1 future endo patient have a better experience than I did. A long đ§”: 1/?
3 weeks ago, I had an 8+ hours-long endo excision surgery that resulted in a unilateral #salpingectomy, an #appendectomy, & a partial #BowelResection. The thing is, it didnât have to be this way. 2/?
Iâve had horribly painful periods since I was a teenager. Doctor said it was normal, just start taking ibuprofen a couple days early. By 18yo, oral contraceptives were recommended to manage it. That âworkedâ for about 10 years? 3/?
1/ Un 𧶠sur ce nouveau #test sur l'#endométriose.
Malheureusement pour les #femmes qui en souffrent, ceci relĂšve plus du #marketing que de la #science.
PS : Ătonnant que @libe reprenne ça tel quel (@OSS117_Helsinki est moins naif). @CheckNewsfr ?
liberation.fr/societe/sante/âŠ
Malheureusement pour les #femmes qui en souffrent, ceci relĂšve plus du #marketing que de la #science.
PS : Ătonnant que @libe reprenne ça tel quel (@OSS117_Helsinki est moins naif). @CheckNewsfr ?
liberation.fr/societe/sante/âŠ
2/ Ce #test repose sur 2 études parues dans des journaux du groupe #MDPI, souvent considéré comme #prédateur.
Si vous ne connaissez pas la biomĂ©decine, le principal obstacle pour y publier un article est de payer (en l'occurrence, 2280 âŹ).
redactionmedicale.fr/2021/04/des-edâŠ
Si vous ne connaissez pas la biomĂ©decine, le principal obstacle pour y publier un article est de payer (en l'occurrence, 2280 âŹ).
redactionmedicale.fr/2021/04/des-edâŠ
3/ MĂȘme en ignorant la mĂ©diocre rĂ©putation de l'Ă©diteur, l'article sur lequel repose le test a 3 soucis :
A) les rĂ©sultats sont trĂšs peu dĂ©taillĂ©s đ”ïžââïž
B) les conclusions sont exagĂ©rĂ©es đ€
C) les auteurs semblent avoir dissimulĂ© un biais majeur đźââïž
mdpi.com/2077-0383/11/3âŠ
A) les rĂ©sultats sont trĂšs peu dĂ©taillĂ©s đ”ïžââïž
B) les conclusions sont exagĂ©rĂ©es đ€
C) les auteurs semblent avoir dissimulĂ© un biais majeur đźââïž
mdpi.com/2077-0383/11/3âŠ
I spoke with @andreagilligan @LunchtimeLiveNT You can hear @MarianHarkin and I follow (1pm)
#Endometriosis is a subject I am passionate about, I have lived with it for 33 years. I am still seeing the same failures as when I fought for my own diagnosis.
pd5i4.app.link/DlwOWMDKSeb?$dâŠ
#Endometriosis is a subject I am passionate about, I have lived with it for 33 years. I am still seeing the same failures as when I fought for my own diagnosis.
pd5i4.app.link/DlwOWMDKSeb?$dâŠ
It is time to change this, I have seen too many people hurt, damaged, lose their fertility, their organs, their quality of life. We need to reduce the diagnostic delay. Disruptive research and technology like @CailinAI play a role to lead people to effective surgery earlier.
Appropriate education of both the public (through school level programmes) and healthcare professionals (all HCPs) is required. A massive campaign worldwide.
#Endometriosis is now considered a systemic disease rather than a disease predominantly affecting the pelvis. Endometriosis affects metabolism in liver & adipose tissue, leads to systemic inflammation, & alters gene expression in the brain..."
sciencedirect.com/science/articlâŠ
sciencedirect.com/science/articlâŠ
#Endometriosis affects 5â10% of women of reproductive age...Despite this high prevalence, disease recognition is inadequate & diagnosis time ranges
from 4 to 11 years, with 65% of women being initially
misdiagnosed." 65%!! /2
from 4 to 11 years, with 65% of women being initially
misdiagnosed." 65%!! /2
"Women often report having difficulty articulating their symptoms or feeling that their symptoms are INAPPROPRIATELY NORMALISED." #Endometriosis /3
#endometriosis in Ireland and reflections from those living with it worldwide.
#Endometriosis #awareness #Ireland #inmheatrĂłis #EndoAdvocate #womenshealth
#Endometriosis #awareness #Ireland #inmheatrĂłis #EndoAdvocate #womenshealth
Autistic Women & medical conditions thread 𧔠RE: Common #Medical symptoms and conditions in #autisticgirls #autisticwomen
By @sbaroncohen et. al I feel this research study has implication on #autisticgirls #gender #ROGD #trans #detrans In my #Autism clinic it has
By @sbaroncohen et. al I feel this research study has implication on #autisticgirls #gender #ROGD #trans #detrans In my #Autism clinic it has
been common to hear about #puberty #Dysphoria
Menstrual problems, #PMDD #PCOS & #endometriosis What is really nice for clinicians is when we see research that backs up our clinical work. In consideration Of #gender distress #dysphoria #ROGD we should be considering this research
Menstrual problems, #PMDD #PCOS & #endometriosis What is really nice for clinicians is when we see research that backs up our clinical work. In consideration Of #gender distress #dysphoria #ROGD we should be considering this research
In making clinical decisions that impact #autisticgirls #autisticwomen with #ROGD #trans #detrans This July 2021 study looked at common medical conditions in #autistic females.
For some time, researchers have been investigating #sexbias in #autism diagnosis. #Medical
For some time, researchers have been investigating #sexbias in #autism diagnosis. #Medical
This 30ish woman of mean height has a recurrent right spontaneous #PTX 18 months after the first. She has a history of thoracic pain receiving spinal steroid injections; o/w healthy. The best way to get the #diagnosis is (poll next)
The best way to get the diagnosis is:
đ§”2/
Second, this thread especially grabbed my attention coming on the heels of yesterdayâs @NIH_ORWH virtual conference on gaps in research about the health needs most particular to women orwh.od.nih.gov/research/2021-âŠ
Second, this thread especially grabbed my attention coming on the heels of yesterdayâs @NIH_ORWH virtual conference on gaps in research about the health needs most particular to women orwh.od.nih.gov/research/2021-âŠ
đ§”3/ One of the most stunning (and maddening?!) slides was a #dataviz that used analysis from this paper: liebertpub.com/doi/full/10.10âŠ
The real reason accepting my #ADHD diagnosis was so difficult is because I already have very severe #endometriosis causing nerve issues eg mobility is affected, and also depression and anxiety. I guess I pushed it aside because I don't want to be seen as even more disabled.
And that's a product of living in an ableist society. People make it hard for us because they stigmatise us. Because of my severe endometriosis and nerve issues, my last employer tried to declare me "incapacitated" and tried to keep others from hiring me based on my health.
People push disabled people out of society because they don't see us as valuable when societies main thing is being a capitalist society. Disabled people to the world seem like liabilities. Like we can't provide the same kinda labour to the world. And that's ridiculous.
