Discover and read the best of Twitter Threads about #pancreascancer
Most recents (6)
Still struggling with the wording of this invitation. ‘#COVID-19 has exacerbated the raging #opioid crisis driven by the nation’s more than 50 million #pain suffers......’. I have contacted both @RepJudyChu & @RepWalorski office to express my concern & to 1/ 
attempt to understand why the blame for the #opioidepidemic seemed to be placed at the feet of those that have #chronicpain. In the past years the # of #opioid pain medication prescriptions have plummeted yet rates of overdose climbed. Many individuals with #chronicpain 2/
who benefitted from treatment from #opioids have been pulled off & abandoned; their #QoL decreasing & suffering increasing. My kids & my husband were/are part of the 50 million that experience/experienced #chronic pain due to #hereditarypancreatitis & #pancreascancer 3/
#PainAwarenessMonth
My kids have #hereditarypancreatitis. The pancreas can weak havoc on ones body; nausea, malabsorption,vitamin deficiency and #pain; horrible pain. The option we were given was 2 remove #pancreas, spleen, half the stomach & other ‘parts’ to 1/
My kids have #hereditarypancreatitis. The pancreas can weak havoc on ones body; nausea, malabsorption,vitamin deficiency and #pain; horrible pain. The option we were given was 2 remove #pancreas, spleen, half the stomach & other ‘parts’ to 1/
ensure that there 75% of developing #pancreascancer did not occur & that it would address their pain. It did not. They both came out with multiple complications. While this transplant CAN produce good outcomes there are a number, such as my kids left with #pain 2/
@ProjectECHO I just wanted to share that as a #caregiver of two adult children with #chronicpain these screen shots feel incredibly biased. I have watched my husband & my children experience #stigma by medical professionals due to the fact they had/have #chronicpain 1/
my husband passed due to his illnesses #pancreascancer #hereditarypancreatitis. My kids live each day in #pain. We have tried many other options, some of which actually have caused life long injury. #Opioid pain medications have provided them some QoL. They have often 2/
been questioned if the pain is really that bad? Curious if you teach about malabsorption issues? Both my kids have them. Unfortunately due to lack of knowledge (even though throughout chart) about malabsorption in relation to all medications she has been accused 3/
For those that have #hereditarypaincreatitis there is few options & those options often have large risks. One option is the removal of the #pancreas as well as other organs. At times this benefits. Others it causes more harms & families find 1/ facebook.com/662631262/post…
themselves alone & abandoned because the surgery caused greater harm than benefit. We are cast out, on our own finding options for those complications, for the ongoing pain. While I am happy for those that benefit we MUST find a less drastic option to address this disease 2/
This organ is so often ignored many people outside med field often not familiar with it. While there are some experts there is still so much to learn about this organ. #Diabetes #HereditaryPancreatitis #PancreasCancer 3/
Bird’s-eye view 👁 on what to look out for @WCGIC #WorldGI2020.
Opening remarks on important data 📺 @myESMO - by Dr. Eric Van Cutsem @UZLeuven.
🟩Good to see more #PrecisionMedicine🧬
🟥#Immunotherapy #Immuno-#oncology
🟦TNT & other chemo strategies
@Annals_Oncology #OncoAlert
Opening remarks on important data 📺 @myESMO - by Dr. Eric Van Cutsem @UZLeuven.
🟩Good to see more #PrecisionMedicine🧬
🟥#Immunotherapy #Immuno-#oncology
🟦TNT & other chemo strategies
@Annals_Oncology #OncoAlert
🆕#ctDNA #liquidbiopsies 🩸🧬
👀 👇🏾at the number of #clinicaltrials cropping up in this space‼️
🇦🇺DYNAMIC-II
🇦🇺DYNAMIC-III
🇺🇸COBRA @NRGonc
🇺🇸BESPOKE
🇺🇸@SU2C
🇯🇵 CIRCULATE
🌎COLUMBIA
🇮🇹🇪🇸PEGASYS
🇬🇧TRACC
🇩🇪CIRCULATE
🇫🇷crEATE
🇩🇰IMPROVE-IT
We have 2🇺🇸studies open. #CRCSM #WorldGI2020
👀 👇🏾at the number of #clinicaltrials cropping up in this space‼️
🇦🇺DYNAMIC-II
🇦🇺DYNAMIC-III
🇺🇸COBRA @NRGonc
🇺🇸BESPOKE
🇺🇸@SU2C
🇯🇵 CIRCULATE
🌎COLUMBIA
🇮🇹🇪🇸PEGASYS
🇬🇧TRACC
🇩🇪CIRCULATE
🇫🇷crEATE
🇩🇰IMPROVE-IT
We have 2🇺🇸studies open. #CRCSM #WorldGI2020
#WORLDGI2020 This is 🆒 ☢️ 32-P EUS-guided implantation in #pancreascancer #PANCSM @myESMO @WCGIC @Annals_Oncology.
Still miles to go. OS median of 16 months pointing again to the systemic nature of disease. Need to piggyback these local approaches to better systemic. #OncoAlert
Still miles to go. OS median of 16 months pointing again to the systemic nature of disease. Need to piggyback these local approaches to better systemic. #OncoAlert
1/ #Blame #shame #language & #chronicpain. I’ve been reflecting a lot on the way language is utilized around chronic pain & how it can reinforce feelings of blame & shame. My husband had #pancreascancer besides a #Whipple, chemo and radiation he became more strict
2/ with diet (imo he already was strict) he added increased vitamins went on depression meds examined faith sought counseling. My point, he did multiple things in attempt to address his overall health. No one would suggest that going on depression meds seeing a counselor
3/ would alone address his #pancreascancer we just wanted a comprehensive approach to his health. That’s the same thing I want for my kids’ health issues as well as #chronicpain. I think & this is just my ho that language used by those working in area of pain causes a HUGE
