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The @icer_review, whose goal is socialized medicine, just published an opinion literally saying that even if the miracle drug, Trikafta, was a cure for #cysticfibrosis (its not but closest we have) that even then it wouldn’t be worth the $$$ to treat my kids. #numbersthatmatter
How dare this unelected agency determine how much money my children’s lives are worth. If Trikafta extends one of my kid’s lives for a SINGLE day, it would be worth it.
This board is modeled after NICE in the UK which hs been denying #cysticfibrosis patients drugs my children in the US have had access to for years. Drugs that are expensive but we know will extend life.
