Discover and read the best of Twitter Threads about #mastcellactivationsyndrome
Most recents (5)
Millions are missing
And the cooper’s wife is too
So we hold our silent vigil
For a girl in a gown too blue
Lost in halls and hospitals
A silver talisman bears true
The diagnosis they doubted
With “Maybe it’s just you?”
And the cooper’s wife is too
So we hold our silent vigil
For a girl in a gown too blue
Lost in halls and hospitals
A silver talisman bears true
The diagnosis they doubted
With “Maybe it’s just you?”
“Maybe it’s your fault
Did you ever think it might?
It sure looks like anxiety
Caught in fight or flight
This isn’t an emergency
I’ve no time to spare tonight
For another hypochondriac
Who thinks her Google search is right”
Did you ever think it might?
It sure looks like anxiety
Caught in fight or flight
This isn’t an emergency
I’ve no time to spare tonight
For another hypochondriac
Who thinks her Google search is right”
The words echo again
We’ve heard them all before
Generations of us girls
Lost to fable and to lore
Seal wives and fae women
Changelings left by the door
You wouldn’t hear our screaming
So now you’ll hear our roar
We’ve heard them all before
Generations of us girls
Lost to fable and to lore
Seal wives and fae women
Changelings left by the door
You wouldn’t hear our screaming
So now you’ll hear our roar
1/4 There is a lot of discussion about what causes #mastcellactivationsyndrome. Rarely are toxic metals such as mercury discussed. There is ample published research associating mercury as a cause of mast cell mediator release, including this study.
2/4 Toxins and infections aggravate the immune system, contributing to inflammation & immune dysfunction that drive symptoms. Toxic metals drive a Th2 immune response leading to increase IgE antibody production that bind to mast cells causing them to release their contents.
2 yrs ago, to raise awareness for the #MillionsMissing due to #MECFS, I started a 🧵 on how tragic chronic illness has consumed my life
But I was too sick to finish, & shortly after uninstalled Twitter. Trapped by illness, unable to advocate.
2 surgeries later... 🧵, 🎬 2
1/
But I was too sick to finish, & shortly after uninstalled Twitter. Trapped by illness, unable to advocate.
2 surgeries later... 🧵, 🎬 2
1/
2017: I was Prof of #Epidemiology @PublicHealthUGA, researching #HIVprevention and #vaccine prep for emerging epidemics. I directed an epi training program @ICI3D. I loved my work & my amazing colleagues!
I was healthy & active 🚴🏄♂️ 🥁
2/
I was healthy & active 🚴🏄♂️ 🥁
2/
Then, I bought a 🏡 and had it renovated. Jan 2018 I moved to the newly built master bedroom addition, I became sick.
⏩ 2 years to 2020. Water burst thru walls on 2 sides of my bed. Revealing walls, subfloor, crawl space filled with mold due to construction defects
3/
⏩ 2 years to 2020. Water burst thru walls on 2 sides of my bed. Revealing walls, subfloor, crawl space filled with mold due to construction defects
3/
EDS Topics, & Comorbidities of EDS, ...& other similar topics likely to be seen in my Twitter: #mEDS #MyopathicEDS #hEDS #MastCellActivationSyndrome #Migranes #Dysautonomia #Erythromelalgia #Dysgraphia #Dyspraxia #Dyslexia
Click on the above tweet to see the connected tweets!
Going to try to pick up where @ahandvanish left off on live-tweeting today's NIH #LongCovid workshop
"We're really having an epidemic of this chronic critical illness and it deserves attention as well." - Dr. Terri Hough, OSU on pulmonary sequelae of #LongCovid.
GI/liver symptoms in hospitalized patients prevalence:
- Dr. Hashem El-Serag (Baylor)
- Dr. Hashem El-Serag (Baylor)
