Discover and read the best of Twitter Threads about #deidentified
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This headline 👇 will be no surprise to anyone who's been following @NHSEngland's plans (and actions) for a while.
But @JonUngoedThomas's article reveals some crucial details about what's intended for your #NHS #HealthRecords that are worth unpacking...
theguardian.com/society/2022/n…
But @JonUngoedThomas's article reveals some crucial details about what's intended for your #NHS #HealthRecords that are worth unpacking...
theguardian.com/society/2022/n…
First, and possibly most significantly, is @NHSEngland officials' confirmation that its '#FederatedDataPlatform' will incorporate patients across England's #SharedCareRecords:
Why is this so important? Because #SharedCareRecords - which every new #ICS* is supposed to have - include your #GPdata, which @NHSEngland has been trying to get hold of for years (most recently last summer)...
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*#IntegratedCareSystem explainer here:
kingsfund.org.uk/publications/i…
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*#IntegratedCareSystem explainer here:
kingsfund.org.uk/publications/i…
There's a big difference between HAVING data at this level of #granularity, and PUBLISHING it.
Providing #age, #sex and street #address is not "#anonymised"; more like mildly #deidentified - and almost certainly still #PersonalData.
What the UK's "getting wrong" is a failure...
Providing #age, #sex and street #address is not "#anonymised"; more like mildly #deidentified - and almost certainly still #PersonalData.
What the UK's "getting wrong" is a failure...
...to adequately #test - and further, a failure to get (positive) test results to where they are NEEDED.
Would you prefer your #COVID19 #diagnosis to be #published, or to get to you, your #GPrecord and to the #PublicHealth teams who are the ones having to manage things locally?
Would you prefer your #COVID19 #diagnosis to be #published, or to get to you, your #GPrecord and to the #PublicHealth teams who are the ones having to manage things locally?
Data is not magic, and to be useful it must be done right.
Greater #transparency of the #systems, their #performance, and the people who are #using our data (and for what) would inspire greater #trust than putting 300,000+ people's on the web.
Assuming things were working, ofc.
Greater #transparency of the #systems, their #performance, and the people who are #using our data (and for what) would inspire greater #trust than putting 300,000+ people's on the web.
Assuming things were working, ofc.
