Discover and read the best of Twitter Threads about #complexconditions
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Just listened to this podcast & it moved me to tears. I recommend #zebras, those with #complexconditions as well as those w #pain listen. My daughter has been deemed a ‘difficult’ #patient a #noncompliant #patient. Her chart is filled w truly notes that leave #physicians & 1/
other medical professionals biased. In a sense she was ‘difficult’ but 4 good reason. She had been dx at age 1 & had so many failed treatments & procedures. Her #voice often was dismissed bc she was young. As parents our voices were dismissed bc we were parents. 2/
With each failed procedure, with each dismissive action by #physicians she bc more difficult. Add in that she also had pain w her condition. And she knew what worked & this seen as ‘seeking drugs’. She also had a few irregular drug tests - which caused pain meds 3/
