Discover and read the best of Twitter Threads about #UpSyndrome
Most recents (4)
Living w Disability
š¹I donāt know what youāre going through
š¹Is every day a struggle?
š¹Greg suffers #DownSyndrome, Alz Dz, Depression, Catatonia
š¹ Yet today he said, āSundayās donut day, but letās have āchockleā anyway & Iāll be ok.ā
Be inspiredā¼ļø
(pic w perm)
#Recovery
š¹I donāt know what youāre going through
š¹Is every day a struggle?
š¹Greg suffers #DownSyndrome, Alz Dz, Depression, Catatonia
š¹ Yet today he said, āSundayās donut day, but letās have āchockleā anyway & Iāll be ok.ā
Be inspiredā¼ļø
(pic w perm)
#Recovery
1/š§µGratitude is Painās big brother
Ā
āŖļøProf Greg teaches me to accept life on lifeās terms
āŖļøICU pts teach me how to traverse pain
āŖļøGratitude is their close companion
āŖļøGratitude is not just a tenet of etiquette ā itās an essential quality of well-being
#UpSyndrome
Pics w perm
Ā
āŖļøProf Greg teaches me to accept life on lifeās terms
āŖļøICU pts teach me how to traverse pain
āŖļøGratitude is their close companion
āŖļøGratitude is not just a tenet of etiquette ā itās an essential quality of well-being
#UpSyndrome
Pics w perm
2/ I canāt pay gratitude w a checkbook, only from the ā¤ļø
šMy Gratitude Ledger is in deficit because I donāt nurture #Wisdom
Ā šI underutilize this superpower of recovery
Ā šGratitude is Gregās antidote to victimhood
šIt helps him rise above any situation
#TheLuckyFew
šMy Gratitude Ledger is in deficit because I donāt nurture #Wisdom
Ā šI underutilize this superpower of recovery
Ā šGratitude is Gregās antidote to victimhood
šIt helps him rise above any situation
#TheLuckyFew
3/ Gratitude canāt be reduced to verbal or written acknowledgment of a gift š
Ā
Greg has a deep sense of awareness of his interdependency on others, you & me, his sisters & brothers.
Heās gracious in heartfelt appreciation despite living w great disabilities.
#FindYourTribe
Ā
Greg has a deep sense of awareness of his interdependency on others, you & me, his sisters & brothers.
Heās gracious in heartfelt appreciation despite living w great disabilities.
#FindYourTribe
1/š§µ Beauty in the Nowā¦
While normally Greg doesnāt #worry, in this case, he succumbed to fear of change.
He was screaming and Crying in Fear - see tweet below.
How did he get through it?
What did he teach me?
#NothingDownAboutIt #DownRightPerfect #UpSyndrome #Tribe321
While normally Greg doesnāt #worry, in this case, he succumbed to fear of change.
He was screaming and Crying in Fear - see tweet below.
How did he get through it?
What did he teach me?
#NothingDownAboutIt #DownRightPerfect #UpSyndrome #Tribe321
2/ Greg held his head in his hands and trembled with worry.
We were disrupting his usual Saturday of watching āI Love Lucy.ā
Think Rain Man type of dependence on routine &
thatās Greg.
So when Kim and I took him to the mountains, it totally messed him up.
What happened?
#T21
We were disrupting his usual Saturday of watching āI Love Lucy.ā
Think Rain Man type of dependence on routine &
thatās Greg.
So when Kim and I took him to the mountains, it totally messed him up.
What happened?
#T21
3/ At first Greg got angry with us for taking him on this trip.
I mean, REALLY angry.
And we know that #ANGER is just one letter away from #DANGER.
He was heading in a dangerous path of rejecting something that could be healing & good in his life.
#TheLuckyFew #FindYourTribe
I mean, REALLY angry.
And we know that #ANGER is just one letter away from #DANGER.
He was heading in a dangerous path of rejecting something that could be healing & good in his life.
#TheLuckyFew #FindYourTribe
1/š§µ Are you happy?
My brother w #DownSyndrome is teaching me tons of life lessons.
In medicine & in life, I make big decisions based on guesstimates of otherās Quality of Life #QOL.
I often GET IT WRONG!
Ā
What do adults w #disability teach me about TRUTH?
Can I learn?
My brother w #DownSyndrome is teaching me tons of life lessons.
In medicine & in life, I make big decisions based on guesstimates of otherās Quality of Life #QOL.
I often GET IT WRONG!
Ā
What do adults w #disability teach me about TRUTH?
Can I learn?
2/š„ How do we ācalculateā someoneās #QOL?
Ā
#Confession: I get it all wrong when I impose MY judgment onto THEIR life.
Ā
Greg, my 57 y/o brother-in-law with Down Syndrome, has a better QOL than I do.
Why?
Digest thisā¦read onā¦
Ā
#DownSyndromeLove
Ā
#Confession: I get it all wrong when I impose MY judgment onto THEIR life.
Ā
Greg, my 57 y/o brother-in-law with Down Syndrome, has a better QOL than I do.
Why?
Digest thisā¦read onā¦
Ā
#DownSyndromeLove
3/ My working definition of QOL is āthe ability to give & receive love.ā
REREAD THATš
Greg understands the Law of the Gift: Treasures GROW when we give them away.
Itās the opposite of hoarding.
Yet, giving ourselves to others can be SCARY. Greg ponders deeply these emotions.
REREAD THATš
Greg understands the Law of the Gift: Treasures GROW when we give them away.
Itās the opposite of hoarding.
Yet, giving ourselves to others can be SCARY. Greg ponders deeply these emotions.
