Discover and read the best of Twitter Threads about #SickNotTired
Most recents (4)
1/ The problem with Myalgic Encephalomyeltis/Chronic Fatigue Syndrome #MECFS is that it seems so ridiculous that exercise could actually make patients worse
How can exercise be so bad for #pwME but so good for almost every other serious illness?
THREAD
How can exercise be so bad for #pwME but so good for almost every other serious illness?
THREAD
2/ New study by @4WorkWell @sunsopeningband et al shows that #MECFS patients have metabolic defects that cannot be explained by exercise phobias, deconditioning or 'illness beliefs'
#pwME have reduced oxygen consumption during exercise tests
buff.ly/2CXH6Hj
#pwME have reduced oxygen consumption during exercise tests
buff.ly/2CXH6Hj
3/ #pwME have an impaired ability to increase their oxygen consumption during exercise
This is entirely different to every other disease we know including cardiovascular disease, lung disease, end-stage renal disease, hypertension & cystic fibrosis
…nslational-medicine.biomedcentral.com/articles/10.11…
This is entirely different to every other disease we know including cardiovascular disease, lung disease, end-stage renal disease, hypertension & cystic fibrosis
…nslational-medicine.biomedcentral.com/articles/10.11…
Thread:
12 reasons that <some> doctors disbelieve patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome #MECFS
1. Doctors tended to see #pwME as having “certain personality traits"
#SickNotWeak #MedEd #MedicalTwitter
bmj.com/content/328/74…
12 reasons that <some> doctors disbelieve patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome #MECFS
1. Doctors tended to see #pwME as having “certain personality traits"
#SickNotWeak #MedEd #MedicalTwitter
bmj.com/content/328/74…
2. Doctors felt that #MyalgicE lacks a plausible pathological mechanism and its symptoms couldn't be ascribed to a precise location
3. There has been variation in the diagnostic criteria for #MECFS which has delegitimised the disease
#SickNotTired
bmj.com/content/328/74…
3. There has been variation in the diagnostic criteria for #MECFS which has delegitimised the disease
#SickNotTired
bmj.com/content/328/74…
4. Doctors felt that #pwME had a poor work ethic
5. Doctors felt that #pwME had a poor attitude, they lacked stoicism and did not make every effort to get better as quickly as possible
#chronicillness #MedEd
bmj.com/content/328/74…
5. Doctors felt that #pwME had a poor attitude, they lacked stoicism and did not make every effort to get better as quickly as possible
#chronicillness #MedEd
bmj.com/content/328/74…
1. thread.
Nice @FrontPediatrics paper providing guidance for docs and #pwME in the diagnosis and management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome #MECFS
#MedEd #MedTwitter #chronicillness #chronicpain #SickNotTired
frontiersin.org/article/10.338…
Nice @FrontPediatrics paper providing guidance for docs and #pwME in the diagnosis and management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome #MECFS
#MedEd #MedTwitter #chronicillness #chronicpain #SickNotTired
frontiersin.org/article/10.338…
2. #MECFS is commonly misdiagnosed as a #somatic disorder
#pwME "..have been humiliated or dismissed by other providers, so [doctors] will need to be.. nonjudgmental.. & acknowledge that #MECFS is not a #psychological condition but a real illness"
frontiersin.org/article/10.338…
#pwME "..have been humiliated or dismissed by other providers, so [doctors] will need to be.. nonjudgmental.. & acknowledge that #MECFS is not a #psychological condition but a real illness"
frontiersin.org/article/10.338…
3. #MECFS symptoms can be diverse, complex, fluctuate and overlap with many other conditions making the diagnosis difficult
This @FrontPediatrics paper lists 33 (!) co-morbidities commonly associated with #MECFS
#MedEd #MedTwitter #pwME #SickNotTired
frontiersin.org/article/10.338…
This @FrontPediatrics paper lists 33 (!) co-morbidities commonly associated with #MECFS
#MedEd #MedTwitter #pwME #SickNotTired
frontiersin.org/article/10.338…
18 myths & misconceptions of Post-Exertional Malaise #PEM in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome #MECFS
#PEM (aka PENE, "flare" or “crash”) is seriously debilitating symptom caused by exercise
#SickNotWeak #SickNotTired #pwME #chronicillness #medtwitter #MedEd
#PEM (aka PENE, "flare" or “crash”) is seriously debilitating symptom caused by exercise
#SickNotWeak #SickNotTired #pwME #chronicillness #medtwitter #MedEd
1. #PEM is just tiredness
No
#pwME experience <pathological> fatigue after #exercise which can be long-lasting and includes debilitating fatigue, flu-like symptoms, cognitive impairment, #sleep disturbance
@PNASNews #MECFS #MyalgicE #MedEd #medtwitter
pnas.org/content/114/6/…
No
#pwME experience <pathological> fatigue after #exercise which can be long-lasting and includes debilitating fatigue, flu-like symptoms, cognitive impairment, #sleep disturbance
@PNASNews #MECFS #MyalgicE #MedEd #medtwitter
pnas.org/content/114/6/…
