Discover and read the best of Twitter Threads about #ResearchLongCovid
Most recents (10)
Our preprint about treatment of 91 #LongCovid patients with triple anticoagulant therapy is out! By Dr Jaco Laubscher, @resiapretorius @dbkell @JanPretorius98 & myself...
#ResearchLongCovid
#TreatLongCovid
#MECFS
#TeamClots
#MedTwitter
#MedEd 1/n
#ResearchLongCovid
#TreatLongCovid
#MECFS
#TeamClots
#MedTwitter
#MedEd 1/n
Symptoms by age 3/n 
Tomrrw I leave my family for a mo to try #helpapheresis for #LongCovid. I know it isn't a cure & results vary & understand my privilege for being able to try it. But I'm going to give an honest, real-time account of it here bc so many are curious. Watch this space #TeamClots
Day 1: up @ 5AM thinking of all the things I shld do today before I leave. Realizing last night was our last fam dinner at home for a mo was tough. Hubs & kids so hopeful this will bring back some of the person I used to be. We all miss her. #LongCovid #HelpApheresis #TeamClots
Two legs of the journey down, one to go. Exhausted but in good spirits. Traveling is hard with #LongCovid & #POTS (understatement of the year). My companion is good company and keeps me smiling.
🧵Today marks 8mths since my 1st #longcovid symptoms and 12wks since a reinfection.
To give an idea of where I’m at, my short term goals are to brush my teeth x2pd, prepare and eat simple meals x3pd, shower every other day and wash my hair x1pw. I am not yet achieving this. 1/7
To give an idea of where I’m at, my short term goals are to brush my teeth x2pd, prepare and eat simple meals x3pd, shower every other day and wash my hair x1pw. I am not yet achieving this. 1/7
My long term goal is to return to uni and finish my physio degree. The next 15wks will determine whether I can do this or not. I’m waiting to hear back on options to go part time. Full time study is too ambitious right now. 2/7
If I can’t get back to uni, it means I lose my income; My partner and I will no longer afford our rent+bills. We’ve relied on savings and help from family so far. Our savings were meant to go towards our 1st mortgage once I graduated. 3/7
It has been an honour to walk alongside my friend & colleague of 21 years @BinitaKane & her daughter Jasmin on their courageous & inspiring journey. #LongCovid in adults children is real & serious. There are treatments available- sadly only for a fortunate few #TeamClots 1/n
(Everything I say is with the express permission of @BinitaKane). Jasmin is not the only child with #LongCovid who has been shown to have microclots & hyperactivated platelets. They are a consistent finding in kids & adults who have travelled for treatment to Germany & SA 2/n
Globally 100m are affected by this vile illness. In the U.K. alone this figure is estimated to be 1.8m, with 2/3rds reporting an adverse impact on their daily activities. 1% of primary & 2.7% of secondary school children fulfilled the criteria for #LongCovidKids 3/n
Long covid has ruined my life. I was 21 when i got ill,now i'm 23. I was a sport science major and i loved powerlifting and bodybuilding(still do). I had a mild initial case. Then i kept getting worse. I am afraid i will never live again and i'm losing my youth day by day./
I simply can't sustain any activity for more than minutes without extreme fatigue that floors me,sometimes literally. My cognitive ability is diminished. No one knows why. There is no help. I am mostly trapped in my bed. My family is devastated. I don't know if i'll recover./
I already lost almost 2 years of my life. Please let's #researchlongcovid & #treatlongcovid so I and millions of others can find ourselves again. I promise we'll pay you back. It could happen to anyone,more people will get sick and we are not prepared. Please don't leave us.
Two years ago I was putting on scrubs ready for my first shift in a Covid Admissions Ward. I was eager to help however I could. Little did I know within five weeks I would become unwell, leading to a debilitating chronic illness which has no cure. 1/
It has been an extremely high price to pay. And yet still my colleagues are sent to work in the same environment with only surgical masks and plastic aprons. How many more will suffer due to covid? Why have we not learned and adapted? This virus is airborne! 2/
Now all I can do is watch by the sidelines. As cases rise, please do all you can to avoid infection. Wear a mask, ventilate a room, test and isolate if you are unwell. 3/
Please join us in welcoming our NEW #LCKchampion Dr Anna Brooks
BCA PhD Immunologist and Senior Lecturer at the Faculty of Science, University of Auckland, New Zealand
Give her some #LCKfamily 💕@DrAnnaNZ
#LongCovidKids #NewZealand #NZ @jacindaardern
longcovidkids.org/champions/dr-a…
BCA PhD Immunologist and Senior Lecturer at the Faculty of Science, University of Auckland, New Zealand
Give her some #LCKfamily 💕@DrAnnaNZ
#LongCovidKids #NewZealand #NZ @jacindaardern
longcovidkids.org/champions/dr-a…
#LCKchampion @surf4children
Dr Danilo Buonsenso
Paediatrician Dept of Woman and Child Health and Public Health Rome
#LongCovidKids #LongCovid
longcovidkids.org/champions/dr-d…
Dr Danilo Buonsenso
Paediatrician Dept of Woman and Child Health and Public Health Rome
#LongCovidKids #LongCovid
longcovidkids.org/champions/dr-d…
A few mths before getting #LongCovid in Nov 20 I was a frontline NHS respiratory consultant; 6am gym goer; couldn’t sit still, always travelling the world with my wife & 2 gorgeous children. Sep 21- bedbound, gastroparesis, complete sound & light intolerance, bladder incontinence
post-viral urticaria that made me suicidal, pericarditis, angina, cognitive impairment, crippling #POTS resistant to all medication, renal impairment, impaired glucose tolerance, intolerant of most foods. Was waiting for life to end. Got v little help from @NHSEngland 2/n
Have spent over £35,000 on supplements, private specialists & experimental treatment in Germany. I am better but still housebound, 50% bedbound, with work or family life a distant dream. Yet I am one of the lucky ones- had the resources to give myself a fighting chance 3/n
Doctor: 'Covid is a respiratory infection.'
Doctor: 'How is your mood?'
Happy to be a co-author of this article about #viralepersistence in #longCovid patients-found by dogs of @Env_Alfort- w/ Dominique GRANDJEAN, Dorsaf SLAMA, Capucine GALLET, Clothilde JULIEN, Marc BLONDOT, Maissa BENAZAZIEZ, Judith ELBAZ and Dominique SALMON #apresJ20 #Covid19
Dogs have already demonstrated high capacity in detecting Covid19 infection in acute phase (very high sensitivity)
Now they help demonstrating once more that #viralepersistence is present « in some Long Covid patient »..#apresJ20 #longCovid #Covidlong #Covid19 👇
Now they help demonstrating once more that #viralepersistence is present « in some Long Covid patient »..#apresJ20 #longCovid #Covidlong #Covid19 👇
I would like to explain why we wrote « at least in some Long Covid patients » : dogs positively discriminated half of the 45 people but there are surely much more #longCovid #Covidlong positive = with #viralepersistence #persistancevirale #apresJ20 👇
