Discover and read the best of Twitter Threads about #OpenNotes
Most recents (10)
@trentrosenbloom @heidi_twedt @ctlin1 @ePatientDave @NHSEngland @crblease @GailDavidge @BRWMcMillan @k59gall @tessajlrichards @MariaHagglund @SaraRiggare @chethanr @brianclaymd @emrdoc1 @ONC_HealthIT @uchealth Oh, are we sharing #opennotes quotes?
I've got a wicked slide deck of quotes, pros and cons.
CONS:
I've got a wicked slide deck of quotes, pros and cons.
CONS:
@trentrosenbloom @heidi_twedt @ctlin1 @ePatientDave @NHSEngland @crblease @GailDavidge @BRWMcMillan @k59gall @tessajlrichards @MariaHagglund @SaraRiggare @chethanr @brianclaymd @emrdoc1 @ONC_HealthIT @uchealth PROs for #opennotes:
(collected in my special slide deck from over the years)
(collected in my special slide deck from over the years)
@trentrosenbloom @heidi_twedt @ctlin1 @ePatientDave @NHSEngland @crblease @GailDavidge @BRWMcMillan @k59gall @tessajlrichards @MariaHagglund @SaraRiggare @chethanr @brianclaymd @emrdoc1 @ONC_HealthIT @uchealth @CALonghurst @JackWestMD @April918 ... and the best #opennotes quote of all time. h/t @tomdelbanco 🤘
🥳 Tooting my own horn 🥳
Just got back from a 1-week road trip vacation and learned... 3 papers were published while I was away!
Here's a quick #medthread 🧵about an epic week of publishing w/friends—what we learned, and what we created!
#AcademicTwitter #patientresearchers
Just got back from a 1-week road trip vacation and learned... 3 papers were published while I was away!
Here's a quick #medthread 🧵about an epic week of publishing w/friends—what we learned, and what we created!
#AcademicTwitter #patientresearchers
Have you ever been asked to peer-review a manuscript and wondered if you were "doing it right?"
You are me.
@crblease & I published a template to help organize the thoughts of newbie reviewers (including patients).
informatics.bmj.com/content/28/1/e…
#academictwitter #patientresearchers
You are me.
@crblease & I published a template to help organize the thoughts of newbie reviewers (including patients).
informatics.bmj.com/content/28/1/e…
#academictwitter #patientresearchers
Now that #opennotes are mandatory, will clinician documentation change?
Rahimian et al., analyzed 143,888 notes from 60 #hemonc clinicians from 2012-16, before AND after introduction of open notes.
TL;DR: Notes became longer AND easier to read.🤔
academic.oup.com/jamiaopen/arti…
#hemonc
Rahimian et al., analyzed 143,888 notes from 60 #hemonc clinicians from 2012-16, before AND after introduction of open notes.
TL;DR: Notes became longer AND easier to read.🤔
academic.oup.com/jamiaopen/arti…
#hemonc
CRITIQUE MY SLIDES!
Earlier this week I delivered a presentation to a patient/family advisory council (PFAC).
I talked about #opennotes & also alerted these leaders to #interoperability and FHIR APIs...
w/o saying "interoperability" or "FHIR APIs."
Did I get it right?
Slide 1
Earlier this week I delivered a presentation to a patient/family advisory council (PFAC).
I talked about #opennotes & also alerted these leaders to #interoperability and FHIR APIs...
w/o saying "interoperability" or "FHIR APIs."
Did I get it right?
Slide 1
🌊
As a wave of health information begins to hit patient portals, many are seeing records for the first time.
🌊🌊🌊
Orgs must collaborate w/their patient advisory councils ASAP to design messaging for patients (& their communities) about what they now possess.
Slide 2
As a wave of health information begins to hit patient portals, many are seeing records for the first time.
🌊🌊🌊
Orgs must collaborate w/their patient advisory councils ASAP to design messaging for patients (& their communities) about what they now possess.
Slide 2
⚡️
And while some aspects of the @ONC_HealthIT are not yet reality...
🧑🏫
Educating patient/family advisors NOW is crucial to ready organizations for a near future when people may share their information with any entity... anywhere... regardless of privacy policy.
Slide 3 /fin
And while some aspects of the @ONC_HealthIT are not yet reality...
🧑🏫
Educating patient/family advisors NOW is crucial to ready organizations for a near future when people may share their information with any entity... anywhere... regardless of privacy policy.
Slide 3 /fin
Words Matter. More patients are reading their notes (aka #opennotes). Clinicians wonder:
What do patients find judgmental OR offensive in their notes?
This #medthread is an overview of what we learned. Read the full paper in @JournalGIM: link.springer.com/article/10.100…
#medtwitter 1/8
What do patients find judgmental OR offensive in their notes?
This #medthread is an overview of what we learned. Read the full paper in @JournalGIM: link.springer.com/article/10.100…
#medtwitter 1/8
Sharing notes w/patients can help w/care.
We can use #opennotes to explain, build trust, clarify & remind patients of plan.
BUT notes also offer patients a window into how clinicians view them & their conditions.
Some patients may feel offended or judged by our words. 2/8
We can use #opennotes to explain, build trust, clarify & remind patients of plan.
BUT notes also offer patients a window into how clinicians view them & their conditions.
Some patients may feel offended or judged by our words. 2/8
Dear oncology: We wrote this paper for you & it was published in @Cancer_Cell.
>10 yrs of research shows pts benefit when they read their clinical notes (#opennotes) however oncologists have been resistant to the practice.
#medthread 🧵 #MedTwitter 1/9
cell.com/cancer-cell/fu…
>10 yrs of research shows pts benefit when they read their clinical notes (#opennotes) however oncologists have been resistant to the practice.
#medthread 🧵 #MedTwitter 1/9
cell.com/cancer-cell/fu…
- I've read every paper on #opennotes
- I've presented about open notes at @ASCO & @AACR
- I'm connected w/the cancer patient community
I noticed:
- Pts are positive about the idea of open notes
- Oncologists are nervous
#bcsm #btsm #lcsm #mmsm #ayacsm #CSSMchat
2/9
- I've presented about open notes at @ASCO & @AACR
- I'm connected w/the cancer patient community
I noticed:
- Pts are positive about the idea of open notes
- Oncologists are nervous
#bcsm #btsm #lcsm #mmsm #ayacsm #CSSMchat
2/9
My colleagues at @myopennotes have conducted studies of pts & clinicians with survey responses in the tens of thousands, but we had never dug into the oncology-specific data... UNTIL NOW.
QUESTION
How do oncology clinician views differ from those of their patients? 3/9
QUESTION
How do oncology clinician views differ from those of their patients? 3/9
Ladies & gentlemen: I'm SO THRILLED to participate in this announcemt! My new business partner: Toronto-based "Gimme My DaM Data" radiology image retriever PocketHealth! Direct result of my #SIIM18 keynote & #OpenNotes work.
There's work to do - game on! news.pocket.health/2020/07/27/adv…
There's work to do - game on! news.pocket.health/2020/07/27/adv…
cc @MightyCasey & @GraceCordovano & @stacy_hurt & @Lygeia & @boltyboy & @claudiawilliams & @HealthPrivacy & @DrDannySands & @zakkohane & @JoshCMandel & @HealthIT_Policy & @GrahameGrieve & @FirelyTeam & @MoehrkeResearch & @RasuShrestha & @shadowdoc & @MyPatientLink & @TheLizArmy &
& @hmkyale & @ctlin1 & @pnagy73 & @chrissyfarr & @SterlingHIT & @GeriLynn & @subatomicdoc & @bfm & @pjonwhite
@BraveBosom @drdonsdizon @ePatientDave @VinceKuraitis @MightyCasey @draparente @AndreaCoravos @HealthPrivacy @emilykg1 @eperakslis @nickdawson WARNING: This might be a long response.
When it comes to all things, including the adoption of various technologies, each health system prioritizes different things in different orders.
It's not that some things are BETTER than others, they just can't do everything at once.
When it comes to all things, including the adoption of various technologies, each health system prioritizes different things in different orders.
It's not that some things are BETTER than others, they just can't do everything at once.
@BraveBosom @drdonsdizon @ePatientDave @VinceKuraitis @MightyCasey @draparente @AndreaCoravos @HealthPrivacy @emilykg1 @eperakslis @nickdawson Before #COVID19--like, years before--some health systems made telemedicine a key priority (e.g., KP Nor Cal). h/t to @RobertPearlMD & @davisliumd
I am no longer a KP Nor Cal pt, but I imagine they were ready to go w/telemedicine, and pts could make appts through the portal.
I am no longer a KP Nor Cal pt, but I imagine they were ready to go w/telemedicine, and pts could make appts through the portal.
@BraveBosom @drdonsdizon @ePatientDave @VinceKuraitis @MightyCasey @draparente @AndreaCoravos @HealthPrivacy @emilykg1 @eperakslis @nickdawson @RobertPearlMD @davisliumd Also before #COVID19, health systems may have been piloting various telehealth platforms--some native to the health system platform w/their own docs, and some using 3rd parties like @teledoc.
I had a televisit in Dec. 2018 and my health system used a 3rd party platform.
I had a televisit in Dec. 2018 and my health system used a 3rd party platform.
@ePatientDave @chrissyfarr @DrDannySands The group known as @myopennotes is a research team.
Studying the CONCEPT of #opennotes is not exclusive: anyone can study it! And @myopennotes encourages people to do so!
Today, we are aware of roughly 100 peer-reviewed papers published on the concept of #opennotes. 1/x
Studying the CONCEPT of #opennotes is not exclusive: anyone can study it! And @myopennotes encourages people to do so!
Today, we are aware of roughly 100 peer-reviewed papers published on the concept of #opennotes. 1/x
@ePatientDave @chrissyfarr @DrDannySands @myopennotes Of the 100 papers we know of, about 30% were written by people we don't work with--which is awesome!
So why don't we have all of these papers on the @myopennotes website? 2/x
So why don't we have all of these papers on the @myopennotes website? 2/x
@ePatientDave @chrissyfarr @DrDannySands @myopennotes If we link to all "#opennotes" papers on our site it would imply that we READ all of the papers and judged them for their quality/scientific validity and now approve of them.
Sadly, we don't have the bandwidth/capacity to review the entire body of work. 3/x
Sadly, we don't have the bandwidth/capacity to review the entire body of work. 3/x
NEW in #JAMIA:
Large assessment of 1,400 patient/family reports examining patient/family experiences and safety concerns related to visit notes.
Most common concerns:
✔️Description of symptoms
✔️Medications
✔️Health problems
academic.oup.com/jamia/advance-… #ptsafety #opennotes
Large assessment of 1,400 patient/family reports examining patient/family experiences and safety concerns related to visit notes.
Most common concerns:
✔️Description of symptoms
✔️Medications
✔️Health problems
academic.oup.com/jamia/advance-… #ptsafety #opennotes
@fcbourgeois @RasuShrestha @BIDMChealth @cmd418 @AtriumHealth @BostonChildrens @jhalamka @TheIHI @AMIAinformatics Paraphrase:
"About 1/4 of 😷/👨👩👦👦 using an online reporting system identified potential documentation inaccuracies in visit notes, of which more than half were considered 'important' by 😷/👨👩👦👦 AND 👩⚕️🏥."
👏 to @fcbourgeois and team.
#ptsafety #opennotes
"About 1/4 of 😷/👨👩👦👦 using an online reporting system identified potential documentation inaccuracies in visit notes, of which more than half were considered 'important' by 😷/👨👩👦👦 AND 👩⚕️🏥."
👏 to @fcbourgeois and team.
#ptsafety #opennotes
@fcbourgeois @RasuShrestha @BIDMChealth @cmd418 @AtriumHealth @BostonChildrens @jhalamka @TheIHI @AMIAinformatics Why is this important?
"... highlights the possibility... clinicians & patients/families may further enhance the ability to effectively capture potential safety issues."
&
As #HealthIT transparency grows, orgs need ways to capture & respond to patient feedback about EHR errors.
"... highlights the possibility... clinicians & patients/families may further enhance the ability to effectively capture potential safety issues."
&
As #HealthIT transparency grows, orgs need ways to capture & respond to patient feedback about EHR errors.
You going to Health Datapalooza next month? YOU WANT TO, you do! It's never just a nerd herd, and this year you'll get #cyberwoke. Settle in, I'll spin the tale. #HDPalooza #epatient #datarights
First, you need to know that as awesome as social media is for #epatients, #research teams, #healthpolicy wonks, #datascience peeps, and other members of the #HDPalooza tribe, there IS a dark side. #cyberwoke #dataprivacy #HumanRights
