Discover and read the best of Twitter Threads about #NeuroME
Most recents (6)
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"What Primary Care Practitioners Need to Know about the New NICE Guideline for #MyalgicEncephalomyelitis/#ChronicFatigueSyndrome in Adults" (Dec 2022)
2 of 4 authors are MDs
Free
mdpi.com/2227-9032/10/1ā¦
I thought this was very good. Will post extracts.
#MEcfs #CFS #MedEd
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"What Primary Care Practitioners Need to Know about the New NICE Guideline for #MyalgicEncephalomyelitis/#ChronicFatigueSyndrome in Adults" (Dec 2022)
2 of 4 authors are MDs
Free
mdpi.com/2227-9032/10/1ā¦
I thought this was very good. Will post extracts.
#MEcfs #CFS #MedEd
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Press release for New Zealand paper:
āNew research provides insight into Long COVID and ME: Researchers have uncovered how post-viral fatigue syndromes, including #LongCOVID, become life-changing diseases & why patients suffer frequent relapsesā
#MEcfs #CFS #PwME #PwLC
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Press release for New Zealand paper:
āNew research provides insight into Long COVID and ME: Researchers have uncovered how post-viral fatigue syndromes, including #LongCOVID, become life-changing diseases & why patients suffer frequent relapsesā
#MEcfs #CFS #PwME #PwLC
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āArising commonly from a viral infection, #MyalgicEncephalomyelitis/#ChronicFatigueSyndrome (#ME/#CFS), is known to cause brain-centered symptoms of neuroinflammation, loss of homeostasis, brain
fog, lack of refreshing sleep, & poor response to even small stressesā
#MEcfs
āArising commonly from a viral infection, #MyalgicEncephalomyelitis/#ChronicFatigueSyndrome (#ME/#CFS), is known to cause brain-centered symptoms of neuroinflammation, loss of homeostasis, brain
fog, lack of refreshing sleep, & poor response to even small stressesā
#MEcfs
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ā#LongCOVID has similar effects on people and is believed to also be
caused by neuroinflammation.
Lead author Emeritus Professor Warren Tate, of the University of Otago's Department of Biochemistry, says how these debilitating brain effects develop is poorly understoodā
ā#LongCOVID has similar effects on people and is believed to also be
caused by neuroinflammation.
Lead author Emeritus Professor Warren Tate, of the University of Otago's Department of Biochemistry, says how these debilitating brain effects develop is poorly understoodā
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āScottish Government backs NICE guidelineā
actionforme.org.uk/news/scottish-ā¦
āIn December 2021, the Scottish Government commissioned Blake Stevenson Ltd to engage with stakeholdersā¦to gather
their views on the NICE guideline on #ME/#CFSā
#MEcfs #PwME #ChronicFatigueSyndrome
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āScottish Government backs NICE guidelineā
actionforme.org.uk/news/scottish-ā¦
āIn December 2021, the Scottish Government commissioned Blake Stevenson Ltd to engage with stakeholdersā¦to gather
their views on the NICE guideline on #ME/#CFSā
#MEcfs #PwME #ChronicFatigueSyndrome
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āFor this independent stakeholder review, a total of 37 stakeholders contributed. This consisted of 14 clinicians, 10 third sector #ME/#CFS organisations/academics & 13 people with lived experience of #MECFS,
(contd.)ā
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PwME
āFor this independent stakeholder review, a total of 37 stakeholders contributed. This consisted of 14 clinicians, 10 third sector #ME/#CFS organisations/academics & 13 people with lived experience of #MECFS,
(contd.)ā
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PwME
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āand a further 93 people responded following an online survey [on the 2021 NICE #MECFS guidelines] that was
distributed to a wider stakeholder group. The response from the majority
of stakeholders was overwhelmingly positiveā
#NeuroME #CFSME #MyalgicEncephalomyelitis
āand a further 93 people responded following an online survey [on the 2021 NICE #MECFS guidelines] that was
distributed to a wider stakeholder group. The response from the majority
of stakeholders was overwhelmingly positiveā
#NeuroME #CFSME #MyalgicEncephalomyelitis
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āME/CFS: What Psychiatrists & Psychologists need to knowā by @DoctorsWithME (March 2022)
doctorswith.me/me-cfs-what-psā¦
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #NeuroME #MEcfs #CFS #PwME #CFSME
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āME/CFS: What Psychiatrists & Psychologists need to knowā by @DoctorsWithME (March 2022)
doctorswith.me/me-cfs-what-psā¦
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #NeuroME #MEcfs #CFS #PwME #CFSME
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ā#ME/#CFS is a chronic, complex, multi-system biological illness with often devastating consequences. It affects all age groups including children, and all social classes. About 75% of sufferers are femaleā
#MyalgicEncephalomyelitis #MEcfs #PwME #CFSME #ChronicFatigueSyndrome
ā#ME/#CFS is a chronic, complex, multi-system biological illness with often devastating consequences. It affects all age groups including children, and all social classes. About 75% of sufferers are femaleā
#MyalgicEncephalomyelitis #MEcfs #PwME #CFSME #ChronicFatigueSyndrome
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ME/CFS āhas a worse quality of life score than many other serious illnesses including cancer, stroke, rheumatoid arthritis and MS. 25% of patients are housebound or bedbound.ā
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #SevereME
ME/CFS āhas a worse quality of life score than many other serious illnesses including cancer, stroke, rheumatoid arthritis and MS. 25% of patients are housebound or bedbound.ā
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #SevereME
Press Release from NICE about its new draft #MECFS guidelines that are out for consultation
meresearch.org.uk/nice-guidelineā¦
āThe draft guideline also highlights the importance of ensuring that people remain in their āenergy envelopeā when undertaking activity of any kindā
#CFS
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meresearch.org.uk/nice-guidelineā¦
āThe draft guideline also highlights the importance of ensuring that people remain in their āenergy envelopeā when undertaking activity of any kindā
#CFS
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Draft NICE guidance ārecognizes that #MECFS is a complex, multi-system, chronic medical condition where there is no āone size fits allā approach to managing symptoms,particularly where there is the potential for an intervention to benefit some people but cause harm in othersā
Draft NICE guidance ārecognizes that #MECFS is a complex, multi-system, chronic medical condition where there is no āone size fits allā approach to managing symptoms,particularly where there is the potential for an intervention to benefit some people but cause harm in othersā
[Thread]
āDoctors examining possible link between #chronicfatiguesyndrome and #COVID19: For many, chronic fatigue syndrome develops after a viral infectionā by Dr Danielle Weitzer and Dr Christie Richardson
abcnews.go.com/Health/doctorsā¦
#LongCovid #MEcfs #CFS #PostCovid #PVFS
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āDoctors examining possible link between #chronicfatiguesyndrome and #COVID19: For many, chronic fatigue syndrome develops after a viral infectionā by Dr Danielle Weitzer and Dr Christie Richardson
abcnews.go.com/Health/doctorsā¦
#LongCovid #MEcfs #CFS #PostCovid #PVFS
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āBy this point, many people can identify symptoms of #COVID19 -- fever, fatigue, shortness of breath -- but fewer know that those can occur after a successful recovery* and closely resemble another illness: #chronicfatiguesyndromeā
*I dislike using ārecoveryā in this way
āBy this point, many people can identify symptoms of #COVID19 -- fever, fatigue, shortness of breath -- but fewer know that those can occur after a successful recovery* and closely resemble another illness: #chronicfatiguesyndromeā
*I dislike using ārecoveryā in this way
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āāAbout 75 to 80% of #chronicfatiguesyndrome cases are post-viral in nature,ā estimated Dr. Mark VanNess, āThe viral infection and following immune response are precipitating causes for long-term symptoms.āā
#LongCovid #PostViralSyndrome #PostViralFatigueSyndrome #MEcfs #CFS
āāAbout 75 to 80% of #chronicfatiguesyndrome cases are post-viral in nature,ā estimated Dr. Mark VanNess, āThe viral infection and following immune response are precipitating causes for long-term symptoms.āā
#LongCovid #PostViralSyndrome #PostViralFatigueSyndrome #MEcfs #CFS
