Discover and read the best of Twitter Threads about #Gastroparesis
Most recents (6)
I have never been one for social media, but this is the first time I wish I could somehow write a tweet that goes viral…
I have a really important thing to say regarding bias towards women in medicine being real and affecting every single one of us.
(Long 🧵…)
@EpilepsyFdn
I have a really important thing to say regarding bias towards women in medicine being real and affecting every single one of us.
(Long 🧵…)
@EpilepsyFdn
I don’t like to share personal experiences, but in this case, I will make an exception…
@Dysautonomia @LauraAPace @MetrodoraInst @dys_project @dysclinic @EpilepsyFdn @epilepsysociety
@Dysautonomia @LauraAPace @MetrodoraInst @dys_project @dysclinic @EpilepsyFdn @epilepsysociety
For context, I believe it is important for you to know that I am a Biotechnology Engineer and a Master of Science in Neurobiology. I also have a rare #epilepsy which presents itself as #dysautonomia, which is not common…
I've summarized the guidelines here👇
#MECFS never gets easier to accept.
Every Fall/Winter my health declines significantly. In the Spring/Summer, my health improves a bit.
Each year though, my overall baseline declines.
It feels like dying slowly and painfully. Never knowing when your body will just quit.
1/
Every Fall/Winter my health declines significantly. In the Spring/Summer, my health improves a bit.
Each year though, my overall baseline declines.
It feels like dying slowly and painfully. Never knowing when your body will just quit.
1/
And no. I’m not depressed or anxious. (Though it would certainly be understandable if I was.)
In fact, I continue to be in awe of myself and my community’s emotional strength in the face of this relentless physical suffering.
2/
In fact, I continue to be in awe of myself and my community’s emotional strength in the face of this relentless physical suffering.
2/
Any one of the typical #MyalgicEncephalomyelitis symptoms, turned up to an 8/10 intensity, would be difficult to live with after awhile. It would wear you down.
By the time you get to 3-4 of these symptoms, it’s debilitating.
Imagine getting to 100-200 daily symptoms.
3/
By the time you get to 3-4 of these symptoms, it’s debilitating.
Imagine getting to 100-200 daily symptoms.
3/
🧵 It’s #DisabilityPrideMonth and we’re seeing another wave of COVID globally, so here’s a list of reasons why you should watch the Netflix documentary ‘Unrest’ and educate yourself on #MECFS and #LongCovid
ME/CFS, also known as Myalgic Encephalomyelitis/Chronic Fatigue Syndrome is a multisystem, physical disease that can be identified by its cardinal symptom, PEM (Post Exertional Malaise), in which after activity, the individual experiences a delayed worsening of symptoms. 1/
These symptoms are debilitating and leaves sufferers after activity, even on the mild end of the spectrum, with migraines, light/noise sensitivity, vertigo, nausea, vision changes, widespread muscle/joint pain, weakness, orthostatic intolerance and at its worst, paralysis. 2/
part 5: after a bit of work I was able to transfer my perscription to a Walmart in another town. I know if I stayed with @Walgreens I would continue to have late meds, get excuses, and have my health decline. I knew id continue to go to the ER [high risk during covid] due to this
part 4: they are still messing up! they deleted my other perscription thinking it was a duplicate [it wasnt] and now 9 days after my original order & blaming everything on the supplier decided to change supplies and say it will come Monday. its a bit late now isnt it?
part 3: update on my @Walgreens problem a med that I need daily to stay out of the hospital has been ordered every day since last Friday. they told us theyd call with news & never did multiple times. never accepted responsibility either
An interesting inquiry: what is primary and what is secondary? t.co/BJIYB1bWvT
The question is whether the primary etiology of hypermobility of soft tissues is ineffective nutrition having been used. Also, could improper nutrition be a co-factor in development of hypermobile tissues?
