Discover and read the best of Twitter Threads about #DataStore
Most recents (12)
Finally, the #GoldacreReview is published! (During Parliamentary Easter holidays, mid-ping-pong on the #HealthAndCareBill...)
It's 221 pages - each PDF page is a double page spread - so this could be a lo-o-o-ong [Thread].
Here goes...
It's 221 pages - each PDF page is a double page spread - so this could be a lo-o-o-ong [Thread].
Here goes...
First point to note, in the Terms of Reference (p5), is that this is about "access to #NHSdata by #researchers, #commissioners, and #innovators" - i.e. #Planning and #CommercialReUse - so it is directly relevant to the operation of millions of people's #NationalDataOptOuts... 
"185 wide-ranging recommendations for us to explore", says @sajidjavid (p6). Gulp! Time for some coffee...
"systems that ensure #underrepresented groups are well represented" may (partly) refer to this "landmark review", which got off to a slow start:
gov.uk/government/new…
"systems that ensure #underrepresented groups are well represented" may (partly) refer to this "landmark review", which got off to a slow start:
gov.uk/government/new…
Without fanfare, the reasons for which will soon become obvious, @NHSEngland finally published its #DataStore "#DisseminationRegister":
england.nhs.uk/publication/da…
18 months after we first pointed out it had to, and over a year since we began requesting it!
Let's take a look...
england.nhs.uk/publication/da…
18 months after we first pointed out it had to, and over a year since we began requesting it!
Let's take a look...
For starters, it's staggering how little information the register actually contains. Just 18 lines, on 18 data flows or extracts over the past 18 months!
This for what has repeatedly been claimed as a "vital #COVID19 resource"?!
Here's a snapshot of ALL of them 👇
This for what has repeatedly been claimed as a "vital #COVID19 resource"?!
Here's a snapshot of ALL of them 👇
Of those 18 data flows, nine of them are to do with the #vaccination programme - and only started from February of this year. A tenth seems to be mis-dated, unless we had a vaccine no-one ever heard of in April 2020? 🤔
Several of the other named purposes we already knew...
Several of the other named purposes we already knew...
On this I can agree with @Dominic2306, and go further.
#SW1 #IT and #IG has been in a parlous state for well over a DECADE, and more.
A year and a slew of inquiries after the @HMRC #ChildBenefit #DataBreach in 2007, we #FOIed every Government Department about the #databases...
#SW1 #IT and #IG has been in a parlous state for well over a DECADE, and more.
A year and a slew of inquiries after the @HMRC #ChildBenefit #DataBreach in 2007, we #FOIed every Government Department about the #databases...
..of #PersonalData they held. (Initially just the ones containing over 1 million records.)
I'll have to dig up the responses, but I clearly remember only 4 or 5 (out of 24) even had an #InformationAssetRegister, i.e. just a basic list of all the #databases for which they were...
I'll have to dig up the responses, but I clearly remember only 4 or 5 (out of 24) even had an #InformationAssetRegister, i.e. just a basic list of all the #databases for which they were...
...'#responsible'.
The responses from @cabinetofficeuk & @10DowningStreet were even more appalling; they admitted allowing officials to routinely make copies of #population-scale data "for policy reasons" with no #oversight, no #audit, no defined #IG processes, and no idea of...
The responses from @cabinetofficeuk & @10DowningStreet were even more appalling; they admitted allowing officials to routinely make copies of #population-scale data "for policy reasons" with no #oversight, no #audit, no defined #IG processes, and no idea of...
If @NHSEngland claimed that, NHS England LIED. (Not for the first time...)
The original @PalantirTech contract is here:
cdn-prod.opendemocracy.net/media/document…
And the story behind how it was awarded is here:
thebureauinvestigates.com/stories/2021-0…
#WatermelonCocktails
The original @PalantirTech contract is here:
cdn-prod.opendemocracy.net/media/document…
And the story behind how it was awarded is here:
thebureauinvestigates.com/stories/2021-0…
#WatermelonCocktails
If @NHSEngland & @NHSX want to talk about #transparency and proper #process, then why haven't they published the data release register for the #COVIDDataStore from which @PalantirTech and others are fed?
We've been asking for it since March 2020; we reiterated & escalated our...
We've been asking for it since March 2020; we reiterated & escalated our...
..request in writing in June 2020; colleagues at @useMYdata made an identical request in October 2020:
usemydata.org/resources/use%…
and @NHSEngland's Chief Data & Analytics Officer told #CitizensJuries in March, April and May 2021 that she could share the #COVIDDataStore...
usemydata.org/resources/use%…
and @NHSEngland's Chief Data & Analytics Officer told #CitizensJuries in March, April and May 2021 that she could share the #COVIDDataStore...
The man's either lying or he's DANGEROUSLY ignorant / ill-informed.
Hancock can't have missed that Cummings' henchman Ben, who attended SAGE, was the brother of Marc Warner (CEO of Faculty Science Ltd, formerly ASI Data Science Ltd) that built the #dashboards Matty Moo-Moos...
Hancock can't have missed that Cummings' henchman Ben, who attended SAGE, was the brother of Marc Warner (CEO of Faculty Science Ltd, formerly ASI Data Science Ltd) that built the #dashboards Matty Moo-Moos...
...so loves, on top of @PalantirTech's Foundry "#DataPlatform" (remember those words!) that @NHSEngland has contracted for another 2 YEARS, to feed data from NHSE's ever-so-untransparent #DataStore.
But let's push it further - away from the now-defunct @CamAnalytica - in the...
But let's push it further - away from the now-defunct @CamAnalytica - in the...
...direction of the notoriously 👇👇👇 bullshitting:
artificialintelligence-news.com/2019/04/12/bab…
#AI company that also happens to be @MattHancock's GP:
blogs.bmj.com/bmj/2018/12/04…
A company Hancock appears to be pushing his @NHSX minions to use to replace #NHS111 triage...
pulsetoday.co.uk/news/technolog…
artificialintelligence-news.com/2019/04/12/bab…
#AI company that also happens to be @MattHancock's GP:
blogs.bmj.com/bmj/2018/12/04…
A company Hancock appears to be pushing his @NHSX minions to use to replace #NHS111 triage...
pulsetoday.co.uk/news/technolog…
Apropos of @thesundaytimes article, a few thoughts: firstly, as I tweeted 2 days ago 👇 & in stark contrast to the #transparency around other tech/data intitiatives - *cough* @NHSEngland #DataStore *cough* - the team published a blog on what it was doing:
healthtech.blog.gov.uk/2020/10/29/how…
healthtech.blog.gov.uk/2020/10/29/how…
In this blog, the app team gave an explanation of the latest changes it had made - including a reduction in the #RiskThreshold, which took account of TWO factors: the inclusion of a measure of #infectiousness in the API *and* a new #distance algorithm...
healthtech.blog.gov.uk/2020/10/29/how…
healthtech.blog.gov.uk/2020/10/29/how…
In case folks aren't aware, @Google & @Apple's #ExposureNotification API is quite frequently updated. As the #Android developer pages (and #nhsxCOVID18app's blog) say, the #infectiousness field was only added at v1.6; with functionality changing at 1.7 👇
developers.google.com/android/exposu…
developers.google.com/android/exposu…
So let's unpack this.
We hear a lot about "#dashboards"; we were even promised sight of one, back in March* - though we've not seen it yet.
But what are they, in reality?
__
*healthtech.blog.gov.uk/2020/03/28/the…
We hear a lot about "#dashboards"; we were even promised sight of one, back in March* - though we've not seen it yet.
But what are they, in reality?
__
*healthtech.blog.gov.uk/2020/03/28/the…
Well, for starters, we know quite a bit about @NHSEngland's 'dashboard(s)': back in March, @MattHancock gave it powers to DEMAND confidential patient information from care providers*, for (broadly defined) "#COVID19 purposes"...
__
Under the #COPInotices:
gov.uk/government/pub…
__
Under the #COPInotices:
gov.uk/government/pub…
...and we know @NHSEngland's hoovering up *at least* 70 different datasets into its #DataStore (the list at data.england.nhs.uk/covid-19/ is no longer comprehensive due to the controversial contents of some of the datasets).
As its "#PrivacyNotice" points out,
england.nhs.uk/contact-us/pri…
As its "#PrivacyNotice" points out,
england.nhs.uk/contact-us/pri…
Compare & contrast:
On 28 March, @NHSEngland & @NHSX promise "to make as much data openly available as possible over time, including a separate #dashboard to support public understanding":
healthtech.blog.gov.uk/2020/03/28/the…
As of 25 Aug, there's no public dashboard for their #DataStore...
On 28 March, @NHSEngland & @NHSX promise "to make as much data openly available as possible over time, including a separate #dashboard to support public understanding":
healthtech.blog.gov.uk/2020/03/28/the…
As of 25 Aug, there's no public dashboard for their #DataStore...
...no comprehensive list of all the projects & companies using (our) data - either for the @PalantirTech-powered dashboards, or for other things - nor a published list of all data releases/accesses, much less their approvals. The #DataStore 'Data Reference Library' now omits...
...any mention of any datasets that officials think might be 'controversial' because of their contents. (It's OK, we have the diff for #CoronavirusInquiry.)
Meanwhile, as @NHSEngland hides in its bunker, and the centralised #TestandTrace programme lurches from farce to farce...
Meanwhile, as @NHSEngland hides in its bunker, and the centralised #TestandTrace programme lurches from farce to farce...
So, @DHSCgovuk, when will you publish the #DPIAs for the "parts of" the #TestandTrace programme that your lawyers say are "in place"? And also all the #contracts & #SchemesOfWork?
#Transparency matters.
news.sky.com/story/coronavi…
#Transparency matters.
news.sky.com/story/coronavi…
Noting they aren't linked from even the most obvious place, i.e. @PHE_uk's 'Privacy Information' page: contact-tracing.phe.gov.uk/help/privacy-n…
Fascinating piece by @rowlsmanthorpe on the beleaguered #nhsxCovid19app:
news.sky.com/story/coronavi…
Insiders pretty much nail the two core problems: firstly, lack of clarity on what the app was supposed to be & do, and secondly 👇
news.sky.com/story/coronavi…
Insiders pretty much nail the two core problems: firstly, lack of clarity on what the app was supposed to be & do, and secondly 👇
To those attuned to internal cultures, there are some amusing echoes of @ukhomeoffice: @MattHancock's "4%" tirade, reminiscent of @sajidjavid's insistence that @Apple should change iOS to suit HO's #SettledStatus scheme, and some wicked interorganisational chess 👇
The only bit that spoils the piece for me is this 👇
If you've been following its development and read the contracts & DPIA, you'll know @NHSEngland (not @NHSX) is controller of the #COVID19 #DataStore, which sits on @Microsoft @Azure.
@PalantirTech doesn't "run" anything...
If you've been following its development and read the contracts & DPIA, you'll know @NHSEngland (not @NHSX) is controller of the #COVID19 #DataStore, which sits on @Microsoft @Azure.
@PalantirTech doesn't "run" anything...
Exactly this.
Compare this 👇 section of the @voxdotcom article to which Rachel refers, with @NHSEngland's #COVID19 '#DataStore', with its stated long-term ambitions, that @medConfidential laid out for Parliament *in March 2019*:
data.parliament.uk/writtenevidenc…
Compare this 👇 section of the @voxdotcom article to which Rachel refers, with @NHSEngland's #COVID19 '#DataStore', with its stated long-term ambitions, that @medConfidential laid out for Parliament *in March 2019*:
data.parliament.uk/writtenevidenc…
While @NHSEngland has made some stupid, dangerous mistakes ("NHS Foundry") people losing their minds over @PalantirTech's involvement is exactly what @10DowningStreet & @faculty_ai are banking on. By the time folks understand what #Foundry actually does, they'll have moved on...
...the "#dashboards" (just as in USA, still secret - not from No10 but from local #PublicHealth teams tells you all you need to know) will have been recommissioned. Made permanent, so Whitehall technocrats can tell NHS professionals (or their replacements) how to run hospitals...
So, @MattHancock, rather than dribbling out info months after the fact will you please get @DHSCgovuk & @NHSEngland to publish a list of ALL #COVID-related projects, related contracts & data access RIGHT NOW.
Also, it doesn't bode well that you're misrepresenting genuine research!
@OpenSafely doesn't work on the #DataStore, it sits on #TPP's servers - which you'd know if you had the first clue or bothered to read its homepage: opensafely.org
@OpenSafely doesn't work on the #DataStore, it sits on #TPP's servers - which you'd know if you had the first clue or bothered to read its homepage: opensafely.org
And BTW, no-one's buying your transparent shilling for @faculty_ai:
Its "new cutting-edge predictive technology" was no help in the first wave - 'cos no overwhelm - but you gotta announce SOMETHING now, to justify paying Marc Warner & co. even more...
Its "new cutting-edge predictive technology" was no help in the first wave - 'cos no overwhelm - but you gotta announce SOMETHING now, to justify paying Marc Warner & co. even more...
