Discover and read the best of Twitter Threads about #DIYPS
Most recents (3)
@BeLikeLight @RemRunner @TEDTalks @TEDx Hi Julie! I'd be happy to discuss the potential blind spots in that earnest perspective. For starters, if they talk to *doctors* all day, does that mean there's no value going to conferences where doctors speak?
It's not a snarky question. Really think about it. (cont'd)
It's not a snarky question. Really think about it. (cont'd)
@BeLikeLight @RemRunner @TEDTalks @TEDx There's a chance the implied message is "I doubt there's anything new I could learn from any patient I haven't met." That is (honestly) a sure-fire way to become out of touch and get blind-sided.
@BeLikeLight @RemRunner @TEDTalks @TEDx I'd be happy to engage in a dialog about specifics. Has this doc heard about what I call "superpatients" - patients like @Doug_Lind_Say who designed his own surgery, @HugoOC who hacks his ICD, the whole #DIYPS / #WeAreNotWaiting T1D community, or T1D pts who pre-bolus, etc?
THREAD:
(from my presentation at #DData19 regarding what we're learning in the real world with DIYAPS systems like #OpenAPS.)
(from my presentation at #DData19 regarding what we're learning in the real world with DIYAPS systems like #OpenAPS.)
First, some context - it was 5 years ago at one of the early DData meetings that @scottleibrand & I shared about the smart, louder alarm system (#DIYPS) that we had created & I had used in the last year...and what we planned to do next, like trying to close the loop. #DData19
A brief history of how the #WeAreNotWaiting hashtag came to be. (thread) 
On November 15, 2013, @AmyDBMine @DiabetesMine @Tidepool_org Line co-hosted the first D-Data Exchange in a small room at @Stanford.
Line was @skrugman and @ianjorgensen's healthcare design studio - they were working with @Tidepool_org at the time and helped produce the event. That week, all of the Tidepoolers were having an offsite at my house.
